Is anybody still here?

Is anybody still here on this site? I have posted a few times needing help or advice but all I hear is crickets........surely someone has something to offer, even if it just a comforting hang in there. Sorry for the whinge but I'm close to giving up completely as no one is helping me in the professional sector, just letting me rot at home. Switzerland is getting closer.

[orangecity41]

I am a senior and was diagnosed with 2 types of neuropathy, Hereditary Motor Sensory and Peripheral of my ankles . I am taking gabapentin which helps me. I also try to get in a walk everyday. I use trekking poles when walk.

[Beatirce]

In the UK, feeling exactly the same for my partner who was diagnosed with PN in 2022. GP and consultant say there is no treatment and he's been left. No help or advice or anywhere to turn for advice or support.

[Inchcock in reply to Beatirce]

UK: Too true, Beatrice. I was told I had PN, no idea what type, after tests in about 2016. They told me there was nothing they could do, we can't mend dying dying neurotransmitters. Since then, despite my occasionally mentioning that it is getting worse, and told that is expected, no treatment or pain relief was offered. I am like many others, getting to the end of my tether with the pain, dropping things, imobility, & sleep-broken nights.

Having a catheter, duodenal ulcer, cataracts, partially deaf, and CI (Cognitive Impairment), I can understand, butam of no use in telling him this.

Just that someone else knows what he's going through, and wish him all the best for me please.

[mariootsi]

I'm having the same problem trying to get help with my neuropathy. Been to many doctors. No relief.

[Inchcock in reply to mariootsi]

I can't get about easily, so do not go to the doctors often. No interest, so no point. When I have to go, I don't even mention things getting worse with the PN, nowadays.

I do hope things can be eased for you.

[mariootsi in reply to Inchcock]

I pray the same for you

[Inchcock in reply to mariootsi]

Bless you, mariootsi!

[Dog2Bone]

I was diagnosed with small vein neuropathy in my legs a few years back and was prescribed amytriptyline by a neurologist here in the Netherlands. I have taken it every night since and now have no burning pain in my feet or legs. Amytriptyline is also prescribed for depression and I sometimes wonder whether without knowing it depression was actually the cause of my physical pain.