prudential nerve decompression

[Marie_97]

Hi breathless1943. I’m so sorry to hear you have been suffering for so long without any answers. I understand your frustration having been through a similar experience.

There is a surgeon in Romania that deals with prudential neuralgia that causes pelvic pain. His name is Dr Mitroi and he is the head surgeon at the Bucharest Endometriosis Centre. You can google the web site but it’s actually easier to get the information off of his Facebook page.

I suffered with severe pelvic pelvic pain for many years. I was sent to several doctors and specialist who told me my pain was all in my head. I even saw a neurologist because I insisted the pain I was having was nerve pain. The neurologist examined me and sent me on my way telling me I needed a gynaecologist and that it was not nerve pain I was experiencing.

After years of searching I found Dr Mitroi and he the only one who was able to properly diagnose me. Five months ago I flew half way across the world to have him preform prudential nerve decompression surgery on me. I still have a lot of pelvic pain but it has greatly improved and that particular nerve can continue to heal for up to 18 months after surgery so I’m really hopeful especially because of the results I’ve already seen.

I don’t know if this information will help you. I can only share what helped me and hope that you find a way to get some relief from the terrible pain this condition is causing you.

It sounds like it might be worth having a conversation with a surgeon who decompresses the prudential nerve to see if perhaps you’re a good candidate for that type of treatment. Those surgeons are few and far between, hence the 12 hour flight I took to have my surgery. Maybe there is one in your area, if so it might be worth having a consultation. For the record, my GP and my pain specialist had no idea where to send me for something like this. I had to find a surgeon on my own so don’t give up just because they don’t know how to treat you or where to send you for pain relief.

Wishing you all the best and sending healing thoughts you way.

[Breathless1943]

Thank you so much Maria,I can understand your frustration to,I’ve been told over the last 10-12yrs,I have IBS,Perineal Nerve pain,Prudential nerve Pain,lately I’ve been told it’s ,Diverticulitis,and also ,” I don’t Know”.

I had an appointment last week with what I thought was a Colecteral specialist ( don’t know if I spelt that right) but he introduced himself to me as a cancer specialist,as he was talking to me about my low ferritin,not anemia,he was writing a blood test out,he then examined me and offered me a colonoscopy which I refused because the last one was so painful,now this may sound hard to believe,but he screwed up the blood test,telling me if I won’t have a colonoscopy,then the blood test shows my ferritin is low,I won’t want to know the answer,quoting “ So you may as well just go home,live your life with no answers that you would like”. That’s because I’m 80yrs old,with Emphysema and he couldn’t operate anyway,his words. So I’m now left like you carrying on trying to help myself. I can cope during the day being up and down but in the evening when you just want to sit and watch television and relax I’m all over the sofa trying to ease the pain.

Sorry I’ve gone on so long,I got carried away. I really hope with all my heart and soul you have found some relief. I will just continue doing the best I can.

Thank you soo much.