Need help on my Worsening Condition

[AbdusSaboor]

Hi All, I would like you guys to know that around 4 years back I wrote a post here regarding my b12 + D3 + Calcium deficiency.

History:

I used to have burning in thighs, severe feet pain and was not able to stand merely for 5 mins then. These were my initial diagnosis results:

b12: 160 pg/ml

calcium: 7.6 mgs/dl

D3: 13.8 ng/ml

I connected with a neurologist and went for D3 and b12 shots, and I have been taking b12 (methacobalamin) shots since then as symptoms appear, and everything was going fine till 2021 January. The symptoms used to disappear and i was living a good life without even thinking about this disease.

Then, I tried to get rid of this disease and went for ayurvedic medicines. I was feeling so good, I didn't have pains and was not on shots as well. But suddenly after 3 months I left ayurvedic as well and shifted my house for which I had to do extreme physical work, since then my pains have increased so very much.

Now:

I consulted a doctor in August 2021 again and started a new regime again with alternate day shots, weekly for 2 months and now am on monthly shots. The problem is, I have started to get twitches here and there in my body, in lips, eyes (earlier no twitching was found). The pain in both heels is horrible when I stand, burning around knees. Now, am also starting get little pain in hands and around elbows when ever I get the pain episodes which is worrying me. I continuously feel the palpitations (kind of lubdub or the heart tone) in my feet.

I am currently taking Homeo Vita c 15 and b12 shots monthly.

Any suggestions would be highly appreciated. My life is becoming scary.

Thanks

[gwendolinej]

If you haven’t already, maybe you should see a Movement Disorder neurologist. We are dealing with a progressive disease and it looks like that’s what’s happening. If you are not taking a levadopa medication, maybe you need to.

Many members here have tried various possible remedies as well and, of course, what works for one doesn’t work for others. These include various supplements, vitamins, including the high dose B1, which many have had great results with. The infrared coronet has also had success with some members.

My husband, who has had strong non motor symptoms, had amazing results with mannitol. See my post. It, like everything, has had mixed results here.

If you put some of your symptoms in the search box, you might get some advice.

Good luck,

Gwendoline