Hello, I have idiopathic, ‘mild’ neuropathy (numb toes and burning feet at night). My B12 levels tested six months ago came back within normal range. Any thoughts on whether it might be worth supplementing with B12 anyway?
I do have raised B6 although have never used supplements. I am cutting out foods such as soya and bananas that I used to eat regularly but it seems hard to get B6 toxicity from food so I am not sure it will make a difference. Any thoughts welcome, thank you.
Just a thought..... a friend of mine suffers with neuropathy and after many blood tests and diet changes a new young doctor found her medication was possibly causing the neuropathy. She is still going through tests. Perhaps if you are on any medication for other conditions it would be a good idea to get them checked out. Your doctor will probably be the person to advise you.
Hello, Thanks for replying. I am not on any medication or have any significant conditions so the neuropathy is all a bit of a mystery. I am still in the wishful thinking phase of trying to find a remedy but I suppose it will come down to having to learn to live with it. Good luck with your own health.
I was prescribed B12 by my neurologist for peripheral neuropathy, as B12 was in low range. It has seemed to help me. I also have Chronic Kidney Disease with low RBC and anemia. Your Doctor is best for determining your need and how much of a dose is required.
Hello, thanks for replying. Just out of interest, were you given supplements or injections? Glad to know it helped you.
I was given B12 supplement , 1000mcg..
Interesting to know, thanks for the info.
B12 serum is not considered an accurate test of b12 and is actually a pretty redundant test. Active b12 would give you more accuracy or MMA which should be high in deficiency. However the general consensus is that there is no test that proves you do or don't have b12 deficiency and DR'S are supposed to treat the symptoms with a trial of b12 injections (although they rarely do). The pernicious anemia society has lots of info.
Hi, thanks for your very informative reply. I will follow up.
Thank you for the info. gemini, I am having a B12 blood test soon. I will ask my GP for the B12 injections.
I've had good luck with this: nervexol.com/nerve-pain-sup... It has B12 and a bunch of other stuff that work synergistically. Although, it does have B6 and it sounds like you do not want more of that. Maybe buy B12, calamarin, R-ALA, and benfotiamine separately and take them together.
Hi and thanks for the info. I will follow up.
Idiopathic means there is no medical reason for the neuropathy. If you had all the tests like I just went through and were still diagnosed with Idiopathic neuropathy it means there is no underlying cause findable. Don’t supplement especially with B acids if you have normal ranges you will cause your mild neuropathy to blow up if you OD on B12/6….people supplements are dangerous t you put in your body and don’t supplement something you have enough of.
Hi and thanks for your advice. Not currently supplementing.
I saw that and I did sorta have a militant reply. I’m sorry but I’m on day 14 of COVID that is kicking my butt. My apologies!
No problem! Get well very soon and best of luck.
Good morning 1jay, your post is already from 2 years ago, but I'm very curious if you were able to find out what caused you to have an increased B6 value without taking supplements. Was there a relationship between your B6 and the neuropathy. I hope your situation hasn't deteriorated in the meantime. 🍀
Good morning Esperanto! No it’s all remained a mystery. GP wasn’t remotely concerned that B6 value was raised. I did try and alter my diet to decrease levels but it was difficult to persuade GP to monitor levels so I am not sure what B6 level is now. I was diagnosed with idiopathic neuropathy by a neurologist but without any sophisticated tests. My toes are still numb and feet occasionally burn at night especially if I can’t get off to sleep. If that happens I find the most helpful remedy is to put on close fitting small socks as suggested by my podiatrist. Strange I know but it seems to positively affect the brain/feet relationship! Enough to help me get to sleep anyway. Fortunately the neuropathy has remained stable and I am praying it never progresses.
I hope your own health is holding up okay and wish you all the best.
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