Neuropathy : Hey you guys jus wanted to... - Neuropathy Support

Neuropathy Support

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Neuropathy

destiny05 profile image
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Hey you guys jus wanted to introduce myself and see if i can find any similar stories or people who are going thru something similar and can offer support i am on this app after coming out of my depression hole and i am ready to talk to somebody . I am 21 years old 2 years ago i got hit by a 16 wheeler and was diagnosed with a radial tear in my L1-L5 vertebrae and after doing all types of intensive therapy for a year and no help with the chronic pain we decided to try epidural steroid injections after no help we were aiming to do a procedure where they go in and burn the nerve thats causing pain (kinda like a root canal ) i wasnt given enough anesthesia so i wokeup crying screaming while the needle was in my back i was given more anesthesia and told to calm down they finished the procedure and i went home that same day having symptoms i never had before (burning , tinging sensation from my knees all the way up my sciatic nerve to my tail bone , extreme pain while sitting , limping and leg weakness in one of my legs ) fast forward two months after having multiple test run (mri,emg,full blood panel) i was told i do not have any immune diseases causing the disorder and i was diagnosed with peripheral nerve dysfunction and neuropathy of my leg fast forward to date i have neuropathy in both of my legs and full blow symptoms in both and also starting to have symptoms in my arms . I am currently being seen at John Hopkins medical center trying to get answers . I have been dancing /cheerleading all my life and it has been really hard accepting the fact i cant use my legs how i used to . i am 21 and have to use a cane to walk through the mall i cant go on normal dates , vacations walk around the city with my friends its very hard to accept but i am dealing with it the best that i can . Thanks for hearing me out you guys ❤️

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destiny05
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Momofson profile image
Momofson

I’m sorry you are having such a hard time. Please don’t give up looking for answers. John Hopkins should be able to find out what is wrong.

Just because you didn’t have antibodies, does not mean you don’t have autoimmune problems.

There are also many healthy supplements that may help you with the pain. Things like MSM and Tumeric with black pepper can help nerve pain. Many others too. Start reading what others have done. Healthy eating is also key.

Also, maybe something like Low Dose Naltrexone (LDN) might help you. The problem with that is that so many doctors aren’t aware of its benefits so won’t prescribe it. There is a lot on the internet about it though. Go to ldn.org and just look up LDN. It’s very interesting how it works on immune system. Keep positive...itsso important to keep your mind strong. You are very young and your body can repair itself!

destiny05 profile image
destiny05

Thanks so much for the advice will do 👌🏾

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