So, I am a 36 year old woman living with mutliple health conditions. I have a genetic condition called neurofibromatosis type 1, migraines, and chronic pain stemming from an incomplete spinal cord injury at the t4/5 level when I was 16. I'm still mobile and mostly able to walk, though my kinesthetic awareness leaves a lot to be desired. I have problems feeling where my feet are in relation to my body, and I stumble, toe drag, run into things quite a lot. I have a cyst on the parietal lobe of my brain, we don't know much about why just yet and I'm pursuing more scans etc.
Anyhow, it's really awesome to have this resource, having people who understand what I'm dealing with is great!
Written by
Fluffylittle
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Hello, welcome. I am sorry you are dealing with all of those, it must be exhausting. Don’t be put off if you don’t get responses straight away, as that’s usual. But, hopefully people will answer you as soon as. Take care. 🤗
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