Chronic nerve pain

[Iona467]

Can anyone advise me?

I’ve been getting nerve pain for years but now it is 3 times a day every day.

First I get pins and needles then I get electric shock type pain, normally arms, then legs, body and face. It last for hours and nothing can stop it. It’s like an itch taking over my body. It’s just awful and last for hours then slowly starts to fade. It feels like something crawling over me when less intense.

Every time I am warm it’s intense.

My doctor just gives me pain relief and blames it on other ailments.

I also get numbness and an unsteady on my feet all the time, I walk with a stick, I fall a lot.

I have a lot of health issues but I don’t believe this is related to them but something else.

Can anyone help?

[Marnie22]

Hi. I can't claim to know much personally about this, but I know someone who had terrible nerve pain for years and she got relief through nerve block injections. Perhaps you can research that and find out if there is a particular specialist service/consultant you could be referred to.Best wishes. 🌼

[Iona467 in reply to Marnie22]

Hi, I’ve had many of the corticosteroids pain injections for my back and neck but they no longer work for me.

[Marnie22 in reply to Iona467]

Hi. Nerve block injections are not the same. They involve anaesthetic rather than cortisone.

[Iona467 in reply to Marnie22]

Oh, didn’t know this. Thanks.

[Marnie22 in reply to Iona467]

👍🌼

[BlanketTime1 in reply to Marnie22]

i forgot about those! i also get nerve burns every few months to deaden some of my pain centers in my back.

[Iona467 in reply to Marnie22]

I’ll speak to the surgeon.

[Marvell150]

Gabapentin helps me

[Iona467 in reply to Marvell150]

Didn’t help me sadly.

[BlanketTime1]

i would ask for a neurology referral as there are some red flags, the most obvious being worsening symptoms when you get overheated.

i have something called l'hermittes sign; when my neck moves a certain way i get what i call lightning bolt pain down my spine, all the way into my arms and sometimes down my legs to my feet. i hate it; it keeps me awake, which makes my other symptoms worse.

do you take nerve pain medication? i ask b/c (though less often now), some drs might want to throw opiates at it. some might also give you a muscle relaxer or anti-inflammatory med. i've got other issues (ataxia and dystonia among them), but i found a combo of meds helps me most.

[Iona467 in reply to BlanketTime1]

Yes, I get that too. I am taking Tramadol 100gms plus Duloxetine 30mg.

[BlanketTime1 in reply to Iona467]

does it work? every time i get overheated recently, the next day i have lightning bolt pain and can't sleep.

[Iona467 in reply to BlanketTime1]

Nothing works. Overheated this evening and still in pain at 7am. Exhausted.

[BlanketTime1 in reply to Iona467]

i feel your pain🥵. some days my combo of drugs eases the pain, others not so much.

[Iona467 in reply to BlanketTime1]

I am so much worse with heat, don’t know why I get hot though. My neck is a problems, so hard to lie down at night, those bolts you mentioned start straight away. Just had an ear infection and the physio said my neck was making it all worse, I had major balance issues,

[Qualipop in reply to Iona467]

How do you get on with the duloxetine and side effects. GP has just prescribed this along with my opiates but it says not to take after a heart attack which I hd 3 years ago.

[Iona467 in reply to Qualipop]

It didn’t work for me, no reduction in pain, now in a high dose of codeine abs paracetamol

[Qualipop in reply to Iona467]

Side effects? I hve awful reactions to a lot of tablets. I'm already on max dose of oxycodone and paracetamol and they want to cut the oxycodone. They've been told to get everyone off opiates. Not going to happen as there's no alternative.