Pineal Cyst on Brain (22 year old female) - Neuro Support

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Pineal Cyst on Brain (22 year old female)

ElJennin profile image
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Hello,

I'll begin with a little background history.

For the past year or so I have been treated for symptoms of fibromyalgia; headaches, brain fog, extreme exhaustion, muscle aches and numbness, chest pains and many more. I struggled throughout university with this but accounted it for stress, so put it on the backburner. Once I had finished Uni and came home for a well deserved rest, these health problems did not go away.

I asked my first doctor for an MRI scan, as part of me had this niggling feeling in the back of my head (no pun intended) that there was something wrong. My request was declined by the hospital, due to them thinking it would be due to fibromyalgia.

My appointment with the rheumatologist was cancelled by the hospital, as apparently my case wasn't severe enough to warrant investigation.

I went back to my local GP again, now through another doctor, and insisted that I had an MRI. She was brilliant and covered all basics of my health for me: blood tests, stool and urine samples, which showed I had a bacterial infection in my stomach. After an intense week of antibiotics, I felt better, but still struggled with tiredness, brain fog, aches and headaches, which had begun to turn into migraines. I went to the MRI scan she set up for me, which showed that I have a cyst on the pineal gland on my brain.

Obviously this came as a very big shock, only being 22 years old and previously being rather healthy. I spoke to my GP who told me not to worry, that it is benign, but since I'm having these symptoms/side effects, she would refer me on to a neurologist.

This is why I'm posting this in here. My appointment isn't until November, and I have a few questions that I would like answering, if at all possible.

1> what are the treatment options? I have seen through research there is the option of removal, radiation or leaving it. I am under the impression that since I am having these side effects, which are affecting my daily life, that I will be receiving some form of treatment, rather than just monitoring it over time.

2> When researching, it said that the cyst is pressing on my Pineal Gland, which is responsible for hormones and sleep patterns. Now looking back, this completely accounts for how I've been feeling. Furthermore, the websites I've been looking at say that most cysts over 2cm gets removed, whereas my cyst is 1.2cm. What should I expect treatment wise, if any?

3> Finally, since this is completely unknown territory to me, I would like help in suggestions of questions to ask the neuro consultant when I see them. I want to be prepared for my phone consult, and not want to leave the consult thinking "oh I wish I'd asked that."

Thank you for any and all help in advance!

Eleanor :)

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Angelicscripts6 profile image
Angelicscripts6

Hi I have sub arachnoid cyst mid brain right temprol lobe....Like yourself I was in uni but had to drop out due to all weird wonderful health issues but no explanation for them, however like you I was aware there something not right....

Then woke 1 morning & looked like I'd had a stroke ( Bell's Palsy) seen by ENT Professor who sent for MRI on brain & low n behold A cyst was found...

This when told of location explained the weird sensations but also due to size location cannot be removed, if it was I would lose my been ( Personality plus memory) so chose till live with it amongst other health issues that its brought about!