Lifetime of Myositis?

I can remember as far back as aged 5 experiencing weird muscle fatigue and painful shin splints. Does anyone else feel they may have had a lifetime of Myositis?

[Theironfacade]

Yes, I also feel like this. Muscle fatigue, general fatigue, speech therapy, and told I was a lazy child.

A lack of breath, but not asthmatic like other members of my family .

A lack of concentration at school, and problems retaining information. Periods of depression throughout my life , even as a young child,

Horrendous puberty , therefore was dreading the menopause.

Restless arms and legs.

Very sensitive to sunlight, which I put down to having fair hair. Every summer I would have a rash on my scalp. Migraines put down to hormones.

Miscarriages, were just bad luck.

Hills have always been a problem, as has running. My daughter says I run at the same pace as I walk.

I had a hysterectomy at the age of 40.

For the last 10 years , I have put so many problems down to the menopause .

Last year my health deteriorated dramatically.

I had been made redundant. Our retail store one of the many casualties of lockdown.

I started a new job, which I love, but is extremely stressful. I am on call 24hrs , for 4 days then four days off. Your days off you are constantly receiving phone calls and emails. But the major change is driving all day.

I think the combination of uv light and stress, following first flue jab , then covid vaccines was just to much and my body objected big style.

I was diagnosed with DM in October, though had been having problems from the previous December.

Following all the usual test, and being told I had an ovarian cyst but it was of no concern, and my ovaries are working nicely. I deduced , the 32 symptoms I was putting down to the menopause all those years, have got to be DM.

Thank goodness I had a rash, as that is what set the ball rolling to my diagnosis. That and being unable to move.

It would be interesting to know how many others feel this way. Though as we are a select group, with many types of myositist there might not be many of us that can trace our symptoms way back.

Good luck on your journey,