A question about Anti Jo1: Hello, I've had weird... - Myositis UK

Myositis UK

1,264 members515 posts

A question about Anti Jo1

PGzx profile image
PGzx
0 Replies

Hello,

I've had weird blood results since I was a child, my neutrophils (white blood cells) have always been on the low side, but I've never had any other symptoms to point to anything.

Two years ago my GP ordered the whole menu of blood tests to get to the bottom of it and I came out with a weak positive result for the Anti Jo 1 antigen. My GP said this is a marker for Polymyositis and as I'm not experiencing any symptoms I should leave it and get back in touch if I feel muscle weakness.

She didn't define muscle weakness however. I'm 28 and reasonably active with walking and yoga but some days I feel quite weak in my arms and legs despite regular exercise. Now this might just be that I don't build strength that quickly but I also have diagnosed health anxiety and knowing that I have a positive result for this, together with soon entering the age danger zone (30 to 60) and the lack of strength, it's all converging into major mental health issues.

So my question is, does that positive antigen definitely mean that Polymyositis is an inevitable part of my future? When did you guys start experiencing symptoms and how did it start? What can I do to put my mind at ease?

Thanks so much in advance and hope you all have a great day.

Written by
PGzx profile image
PGzx
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Anyone have Drug-induced Myositis?

Hi, I've had a diagnosis of MCAS (Mast Cell Activation Syndrome), but I had an argument with my...

Anyone get calcinosis?

I'm still VERY far from getting a diagnosis (thank you, NHS) and I'd have given up long since if it...

IBM people, please post

I have just found my way to the new site. I hope all those with IBM will as well. I miss your...

Could I have dermatomyositis?

Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses...

Polymyositis

After 4yrs of testing and 2 consultants the diagnosis is now probably polymyositis. However the CK...