Does this ever end,can,t swallow,have to set up feed equipment pump every evening,ends about half 11.weekness in the legs,i use a stick for support.have to be carefull going up and down stairs.saw my specialist the other day should be getting an update on my medication.
myositis nightmare.used to be fairly active,lo... - Myositis UK
myositis nightmare.used to be fairly active,lost a lot of weight,depression,and a sence of being useless.
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englishe
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2 Replies
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Sorry to hear you are having such a rough time. Which myositis do you have?
I believe with the right medication and treatment this disease can be brought under control so you quality of life can be improved .
It must be so awful for you right now.
It’s very important that you see a Myositis specialist Dr because this disease is so rare.
Hope you feel better soon .
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