MS research : I sent this letter to my... - My MSAA Community

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MaryAZ profile image
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I sent this letter to my senator. I encourage everyone to speak up. We can’t sit back and just watch.

Sent this to Senator Mark Kelly today.

Thank you for everything you and Gabby have done for our country.

I write you now because The Multiple Sclerosis Research Program, better known as MSRP was denied funding for Fiscal Year 2025. Another brilliant decision…NOT. I have primary progressive MS. About 15% of people with MS are diagnosed with PPMS. MS is not like other diseases because it affects everyone differently…there is no known direction this disease will go for anyone and at my age - 68, there is no treatment…and now, no hope.

BTW, how much money is being spent on legal proceedings to prevent this government takeover to dictatorship? We don’t know what direction our country is going in, anymore than we know what direction MS is going in.

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MaryAZ profile image
MaryAZ
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10 Replies
Robsmom profile image
Robsmom

I've already written my senator, Jon Ossoff, too.

CatsandCars profile image
CatsandCars in reply toRobsmom

I just mentioned to MaryAZ that every state has two senators, so you can write the other one, too. Sometimes you hear a lot from one and not the other...

I'm glad that you're doing what you can to protect MS research.

Robsmom profile image
Robsmom in reply toCatsandCars

Oh, I wrote Rafael Warnock first, he's actually my senator. I'm signed up with MS Society Advocacy, so I write and have been to a couple of State Action days in GA.

CatsandCars profile image
CatsandCars in reply toRobsmom

That's fantastic. I just signed up, too, when I was looking for info on what happened. I hope there will be something I can do.

CatsandCars profile image
CatsandCars

MaryAZ, good for you. Thanks for letting everyone know. These are dark and terrifying times, and it's something of a comfort to have something to do.

Every state has two senators, so you might want to write the other one, too.

mrsmike9 profile image
mrsmike9

Good job! I call mine at night and leave messages. I can't get through during the day! Had fun at a town hall last night!

carolek572 profile image
carolek572CommunityAmbassador

 stepsforNeeC posted about this as well,  MaryAZ . I would encourage everyone to also contact their member of congress. Good post.

MaryAZ profile image
MaryAZ

I won’t waste my time writing to my congressman because he’s an idiot…Andy Biggs. There must be some special Kool Aid in Washington!

Linda3579 profile image
Linda3579

Great letter Mary. Thank you.

Linda3579 profile image
Linda3579

Calling and writing now.

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