I have been experiencing these symptoms and I have a neurologist appointment on the 20th of November. I was wondering if it would be worth mentioning I think my symptoms might be MS to the doctor or should I just let them figure out what’s going on? This is a list of the things I have been experiencing:
Started feeling run down on 11/3 then at 6pm had Numbness in entire right side of body including face left leg to knee. Went to emergency room they told me it was my anxiety that it was called paresthesia and that it would be temporary, since 11/3 have experienced numbness in both arms including hands and fingers, hips, vagina, butt, both legs feet and toes
Sometimes pins and needles
Deep aches in both upper arms forearms right hand thighs right foot
Migraine auras and pain behind the eyes
Right side of chest squeezing and aches under ribs
Jaw aches and feeling uncomfortable after the aches
Varying levels of fatigue including days where it’s hard to walk and move/ hands feeling weak
Tingling/itching of face
Muscle spasms in thighs and arms face and anus
Hands shakier than usual
Body tremors/shaking
Hard to walk feel clumsy movements
Under right rib stitch
Slight incontinence
Felt an electric shock go through my body while I was walking felt like it jolted me lost vision for a moment
Thought it was stress but for a few weeks tried to eat but couldn’t swallow the food lost 20 pounds in a 30 day period sept to oct
thank you for taking the time to read this. It’s been a very worrying few weeks for me and I’m just trying to keep my calm,
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ylstacy
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I'm so sorry this is happening to you, ylstacy. Absolutely, you should bring it up. There are people with MS who have suffered for years before getting a diagnosis, although that doesn't happen as much these days. So do point them in that direction. It doesn't mean that you have MS, but with those symptoms, you should insist on being tested, starting with an MRI.
Is the doctor you're seeing a neurologist? Because that's who you need, and if you were to be diagnosed, unless your neuro was great and gave you a lot of confidence, an MS specialist might be better.
I understand that these kind of symptoms are incredibly scary. Your mind goes all kinds of places, like hwhat if I have MS, what if these symptoms never go away, etc. I will just say that often, people get diagnosed with MS during a relapse, which usually gets better with treatment. Also, if you do have it, treatments have come a long way and are much more effective now.
Advocate for yourself, come back here, ask questions, share your concerns, and we will support you whether you have MS or not. Ask more questions now, if you like. I wish you the best. ❤️
Welcome to this forum, ylstacy . Yes, and I would definitely bring your list to your appointment. You can go to mymsaa.org to look for more resources like how to prepare for your neurologist appointment. Best of luck and do let us know how your appointment goes, okay? 🤗
Some doctors are sensitive to a patient who suggests a diagnosis. They think it is the docs job to come up with the answer. I would bring your list and let the doctor suggest what your symptoms mean. Could be it would be appropriate to suggest MS depending on what your doc says. He may want other tests. In my case my usual doc knew that one of my children was diagnosed with MS so he ordered an mri of spine and then mri of the head; the tests were conclusive for MS. If your doctor give no specific answers to you or does not suggest MRI, then maybe suggest MS but if he gets bent out of shape at your suggestion, maybe find another provider.
Definitely informed the doctor of your symptoms because the more information given is a plus in your diagnosis. Also the earlier you get a diagnosis a treatment plan can be implemented in order to slow down the symptoms you’re experiencing. No need to keep things hidden it’s for your benefits. Many blessings🙏🏾
"No need to keep things hidden." This is a big one, whether you're looking for a diagnosis or trying for Disability. Don't exaggerate or make things up, but be sure to include everything that's happening to you, no matter how weird or far-fetched it seems. All those little things help paint a better picture.
I am so sorry you are experiencing all that. I have found you have to be your own advocate when it comes to medical anything. I would definitely share your list of symptoms with the Dr. See what they say and insist on getting tests for MS if that's what it takes. I do not mean to go negative but Unfortunately between insurance and some doctors it can be like pulling teeth to get things done. I hope you find the answer and relief you need.
ylstacy, You chronicled your symptoms and what you are experiencing in such detail. So sorry you are not feeling your best! I just want to share from my experience, and only use it as a “reference and not your health journey “ often times “we” can discern what is occurring in our bodies better than anyone else. Doctors have their gifts, unfortunately some become obnoxious with it! Basically, not listening to the needs and concerns of their patients! I saw 9 Neurologists back in 2008, experiencing: many of the same symptoms. But to some doctors, I didn’t have enough symptoms for them to feel certain it was MS???? Brain Stabbing Migraines, blurry vision, extreme fatigue etc. My Neurologist who was been treating me for 16 years, did extensive tests and compared previous tests and said to me: “let’s stop all this nonsense “ and get you on a treatment regimen! That was all I wanted, I accepted what I suspected; just help me live with it to the best of my abilities with God’s grace! I pray you will a caring Neurologist who will give you the best and most accurate medical advice. Stay encouraged, we are here for you. 🙏❤️. NeeC
Good suggestions are being shared by our community; getting in touch with the MSAA could give you some insights and may quite helpful. Prayers and stay encouraged 🙏💐
So to add on your post... I have those symptoms and more. My Neuro firmly believes I have MS. He ran the scans and MRI and all necessary. Nothing shows up on anything. So he won't diagnose me. I can not get a single Dr to make a decision due to nothing on scans. So what happens when it doesn't show a positive anywhere, but the Neuro knows you are classic with it. So instead you just sit here getting sicker, weaker and less mobile with no life, future or helpful treatments... I feel so lost and deserted. No medical help at all.
Ylstacy, what happened with your neuro appointment? This is a late reply. I hope he/she ordered an MRI.An M. S. diagnosis is life changing. I am 4 years in this month. If you do, in fact, have M. S., I hope you will give yourself time to grieve the old you. It does get better once you accept it.
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