Bladder issue: I have been taking... - My MSAA Community

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Bladder issue

whwiechm profile image
26 Replies

I have been taking Solifenacin for my bladder for many years, however the price for next year hass gone DRTAMATICALLY up. The alternatives my GP gave ne are Oxybutinin and Ditropan. Has anyone had experience with either of these, good or bad?

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whwiechm profile image
whwiechm
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26 Replies
starlight5 profile image
starlight5

I do not use but would look for an alternative that is not linked to dementia. I believe myrbetriq is one. Good luck

whwiechm profile image
whwiechm in reply tostarlight5

Which is linked to Dementia?

starlight5 profile image
starlight5 in reply towhwiechm

I believe oxybutinin is the generic of ditropan. Both are linked to increased risk of dementia. Do a search ~drugs linked to dementia~ for a long list of drugs that are

Frances_B profile image
Frances_B in reply tostarlight5

Oxybutinin hydrochloride is the actual drug and Ditropan is just one of the brand names that it is sold under.

Beyond future risks of developing dementia, it's also known for causing brain fog and cognitive issues while someone is taking it, plus a bunch of other unpleasant side effects.

drugs.com/sfx/ditropan-side...

health.harvard.edu/mind-and...

pmc.ncbi.nlm.nih.gov/articl...

Onslow729 profile image
Onslow729 in reply tostarlight5

Yes it sometimes appears to be covered up with regards the Dementia Risks.

You are far better off changing even without this risk.

SnowWhite1 profile image
SnowWhite1 in reply tostarlight5

hello fellow soldier in the fight! I’ve used myrbetric for many years now, and it has really helped me dramatically. And to be clear, I have a super pubic catheter along with using myrbetric. Personally, I haven’t experienced any brain fog beyond the usual ha ha! But seriously, I would truly try this. I also pray that God would help you with any fear during this trial of MS much love and God‘s blessings.🥰✝️🌞😇

CatsandCars profile image
CatsandCars

I found this on the Cost Plus Pharmacy website:

costplusdrugs.com/medicatio...

whwiechm profile image
whwiechm in reply toCatsandCars

Interesting, Thank you.

CatsandCars profile image
CatsandCars in reply towhwiechm

You're very welcome.

AquaZumbaFan profile image
AquaZumbaFan

Hi I found the solifenacin on “ good rx” from between 18 and $22 for a 30 day supply for 10 mg..

whwiechm profile image
whwiechm in reply toAquaZumbaFan

Is that the cost for this year? I believe it is going up next year by changing tiers.

AquaZumbaFan profile image
AquaZumbaFan in reply towhwiechm

Yes that was the price you could get it at this week with GoodRx. I’ve been getting co-pay assistance for years through the manufacturers of Myrbetriq.. I am hoping to change up next week when I see my bladder specialist as I had to go on blood pressure medication and it is known for elevating your blood pressure.. would love to get off of some kind of medication 😂

whwiechm profile image
whwiechm in reply toAquaZumbaFan

Is there any way to check the GoodRX price for next year? I am not familiar with their website.

AquaZumbaFan profile image
AquaZumbaFan in reply towhwiechm

I actually just have the free app on my phone… And once you set up a free account, you can just type in any medication that you want to check the price on. It gives you literally the price of the medication at local pharmacies near you and then it gives you a discount coupon to use. For example, my insurance would not cover lidocaine ointment 5% so I was feeling pretty bummed about it until I checked the GoodRx app on my phone and it retails for $313 for a fairly small tube of it. But with the GoodRx, I was able to get it for $18.50. One of my local grocery stores. And then you get to see the prices of pretty much all of the local pharmacies.… Cvs, Walgreens, Costco, Walmart and shockingly. I got it for a better deal at the most expensive grocery store in the area, which is Wegmans…

Brindisi1 profile image
Brindisi1

Myterbig big price tag also.doesnt affect eye pressure

Scout4x4 profile image
Scout4x4

I have not been on either medication. I have bladder control issues and I have learned that if it feels like go then I better go. I can't hold if I try. Embarrassing monuments have happened multiple times in the past while looking for a restroom and getting there to late.

I hope the alternatives work for you. Good luck!!

whwiechm profile image
whwiechm in reply toScout4x4

That was how I was before starting the medication, needing to empty my bladder about every 1-2 hours. Frustrating for trying to sleep. Now I can use a catheter 3x a day and taking the med, I am much more free to go on with a semi-normal life with obvious MS limitations.

Linda3579 profile image
Linda3579 in reply towhwiechm

I’m wondering if you have trouble with bladder infections? I use a catheter about 5 times a day. I am taking antibiotics 3 times a week. My urologist wants me to come in for regular antibiotic bladder washes. Have you heard of this? My problem is bladder retention.

whwiechm profile image
whwiechm in reply toLinda3579

The urologist recommended using an antiseptic wipe before inserting the catheter. I have had 2 bladder infections in 8 years of using the catheters, However it probably works differently for female genitalia.

Linda3579 profile image
Linda3579 in reply towhwiechm

Thank you for your reply.

whwiechm profile image
whwiechm in reply toLinda3579

I forgot to mention cranberry juice. A nurse told me that it helps to prevent UTIs but does not cure them.

Linda3579 profile image
Linda3579 in reply towhwiechm

Thank you! I just started taking cranberry pills.

mrsmike9 profile image
mrsmike9

I take Myrbetriq. First I was on Oxybutinin which I did not like at all. It made my mouth so dry that I drank water all day which made me have to pee a lot, which defeated it's purpose! I felt like I was a hamster on a wheel! Then I learned about the possibility of dementia side effect and I was done. The specialist I saw said the Oxybutinin was the LAST thing he would put someone on, which was confirmed by my urologist.

I like the Myrbetriq. I don't puzzle water all day, and it works. Very, very happy with it.

mrsmike9 profile image
mrsmike9 in reply tomrsmike9

Guzzle - stupid auto correct!

CatsandCars profile image
CatsandCars

Hi again, whwiechm. I was doing a little research into the class of drugs that has been linked with dementia, because I know that I'm taking a few myself and I'm looking for alternatives. (That class of drugs, in case you're curious, is anticholinergic drugs.)

Unfortunately, I found your solifenacin on the list of anticholinergic, which are the ones linked to dementia risk. I don't see anything wrong with taking any that you already have, though, until you can find an alternative.

That leaves Myrbetriq, which does not have a risk of dementia, but is a brand name drug and thus more costly. Insurance companies would rather have you taking the older, cheaper drugs. Based on my experience, this is how you try to get your insurance to pay for Myrbetriq. You accept your doctor's offer of oxybutnyn. You then call your doctor and tell them that it's horrible, it makes your mouth so dry you can't stand it, and it doesn't work for you. Then your doctor can go back to the insurance company and try again. If they say no, it can hopefully be appealed, but there are obviously no guarantees.

Good luck!

Also, you asked the question about GoodRx and checking future prices. GoodRx basically gives you current coupons that can save you a lot of money, but unfortunately it only gives you current prices, not future ones.

If you want to check out Myrbetriq's side effects and contraindications, here's a link:

drugs.com/myrbetriq.html

whwiechm profile image
whwiechm in reply toCatsandCars

Thank you very much.

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