thank you big time!: thank you MSAA so... - My MSAA Community

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thank you big time!

Xvettech profile image
8 Replies

thank you MSAA so much for these cooling devices! It’s the end of October and I am still needing and using them! I don’t think it’s all MS, maybe it’s due to being off my medicine for so long (waiting for Mavenclad to get approved), maybe it’s because of the “change” Whatever it’s from these are literally a life saver! Thank you!

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Xvettech profile image
Xvettech
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8 Replies
NorasMom profile image
NorasMom

I don't remember if mine came from MSAA or not, but anything that helps is worth it! Glad you're getting good use out of yours.

Xvettech profile image
Xvettech in reply toNorasMom

Thank you

MSFlea profile image
MSFlea

So glad you got one! 🥳I could not have made it through the summer without mine, and now, it's October, a high of 80 degrees, and my AC went out! I think I would melt if I did not have a cooling vest. 🥵I also got a neck ice wrap that is a life saver, off of Amazon. My complaints with it are that it warms up too quickly (about 30 min)! But, I keep the 5 other ice packs for it in a lunch bag cooler with a large ice thing (yay brain fog for not remembering the word for it! 🤣) and they stay nice and cold. So I just switch them out as needed. And it doesn't lay on my neck quite where it should, so I use my neck fan to keep it against my skin. The neck fan is also awesome, but makes it difficult to hear, so have to turn it off if talking to people. (The neck wrap also works great for hot flashes!!)🧡🧡

CatsandCars profile image
CatsandCars in reply toMSFlea

Ice pack?

It's interesting that I can find words other people are looking for pretty quickly, but the ones I'm looking for are stubbornly elusive! 😂

CatsandCars profile image
CatsandCars

I bought my own, but it is a lifesaver. If I'm having back pain, sometimes it helps me to turn the vest inside out over a pillow, and then lean against the pillow. Relief!

These programs are so important. 👍

RomCom87 profile image
RomCom87 in reply toCatsandCars

What a great idea! I have to use ice packs every night because of this strange symptom I have had ever since Covid. It’s not hot flashes because it can last a couple of hours. Certain parts of my body get hot and stay hot. I am going to get a vest and use it on my pillow. Thanks!

CatsandCars profile image
CatsandCars in reply toRomCom87

That sounds miserable! You're welcome, and I hope it helps you!

johnMSAA profile image
johnMSAAPartner

We're so happy you received them and that they can help no matter the season, Xvettech !

For anyone else looking to benefit from MSAA's Cooling program, learn more at:

mymsaa.org/cooling

- John, Multiple Sclerosis Association of America (MSAA)

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