MS oldtimer

[CampTiff]

I’ve been diagnosed for 20 years first with RRMS then I got the upgrade to SPMS. I recently started a YouTube channel because I’m no Selma Blair or Christina Applegate and I wanted to give a regular persons’ perspective . Check it out and let me know what you think! youtube.com/@camptiff?si=Nf...

[Cwright170994]

I have a youtube channel too! Not done a new video in a while, but I'm attempting to make "normal" people aware ❤️ here's mine:youtube.com/@lottieew135?si...

[CampTiff in reply to Cwright170994]

Hooray! I love seeing vids be us regular people!

[MSFlea]

I watched the intro video and subscribed! Looking forward to more videos 😀🧡 I think you are brave for putting yourself out there. I am on Intsta Gram, but don't put my face on it, I use an Adventure Buddy instead (an orange and white brontosaurus - orange for MS!!).

I think it is awesome. I had thought about doing something similar, or go live on twitch, things like that... but it all seems exhausting to me, lol. Editing and such seems like a lot of work! I'm really looking forward to your videos, and think it is a much needed area, just your average people, letting other people know what MS is, and everything you are doing. Bravo! 🧡🧡

[CampTiff in reply to MSFlea]

I don’t feel brave, but I know what you mean. It is often hard as a disabled person to want to be seen, but we deserve it as much as anyone!

[GreatDanekids]

CampTiff I really enjoy your YouTube videos, you are so upbeat and bubbly! Each time I finish watching one, I feel better than I did before watching. You are a great spokesperson for MS, please keep the videos coming.

I really like the diaper genie idea, it’s genius! I too deal with incontinence and disposable underwear so that really hit home. Have you tried Botox injections into the bladder? I have had two procedures done so far and it is better, some days almost perfect. It’s not painful and my Dr. does it under general anesthesia so I’m not anxious.

I’m looking forward to your next update and in the meantime, may you be blessed and your days filled with joy. 👋😎

[CampTiff in reply to GreatDanekids]

Thank you for checking it out! I haven’t tried Botox. I’m getting ready to join a new MS neurology group so I may get a new urologist too. We will see what they say!

[carolek572 CommunityAmbassador]

Welcome to this forum, CampTiff ! You are brave! I look forward to hearing more from you! Keep Smiling

[CampTiff in reply to carolek572]

thank you! I appreciate connecting with people, especially others with MS.

[Mollyabigail]

I subscribed! Thank you. We are all just regular folk! Going right now to search a soap holder at Amazon. You are correct - a bath or shower uses lots of energy.

[CampTiff in reply to Mollyabigail]

I was going to post a new video yesterday about seeing a new neurologist after a move, but I recorded it and it had no audio so I’ll have to re-record it when I have energy again! Thanks for subscribing!😊