I made another MS video….: Hi everybody... - My MSAA Community

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I made another MS video….

irhunter profile image
9 Replies

Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy!

MULTIPLE SCLEROSIS ALL STARS on YT that you can trust!

youtu.be/ocsFgWVw9rA

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irhunter profile image
irhunter
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9 Replies
Xvettech profile image
Xvettech

thank you for the great information!

CatsandCars profile image
CatsandCars

Thanks! I really love Dr. Boster. You can tell he's really passionate about helping educate MS patients. I'll have to check out the other ones you mentioned!

Cwright170994 profile image
Cwright170994

I've done some videos on YouTube too! This is one of the ones I put up last year, with my short hair. I filmed and uploaded it roughly a year ago!

youtu.be/6S99PJ5u0KQ?featur...

irhunter profile image
irhunter in reply toCwright170994

Charlotte Thank You So Much For Sharing! I hope that you have continued to be enhancing lesion free! I had to switch from baclofen to Tizanidine. It was making me a zombie. Tizanidine is not as effective for spasticity but for me it truly takes the edge off. My second MRI, six months after my first at diagnosis, was negative for enhancing lesions also… indicating the Mayzent was working. It’s a great feeling!

Cwright170994 profile image
Cwright170994 in reply toirhunter

That's pretty interesting with what you've experienced with baclofen 🤔 I've not had that experience, but I think it's because I get a better night's sleep when I can't feel the "secret" spasms 🤷‍♀️ like, sure, I'll get sleepy during the day, but that's all I've ever known, even before I got diagnosed 🙃I've had a number of MRIs that show I've had a build up of lesions on my brain, but they were from when I was taking copaxone. When I was in hospital for 27 days back in 2021, I got an MRI there. Now, because I hadn't had an MRI at that hospital before, the radiographers questioned I'd I had something called Tumefactive MS. I was also getting communication between my neurologist and other healthcare professionals as carbon copies. That letter scared me, but when I told my mum, she made me laugh about it. In the UK, there's a supermarket called M&S. It's a bit higher class than the ones we normally went to. She named it "M&S MS" 🤣

grammyshay profile image
grammyshay in reply toCwright170994

Thank you!!!

carolek572 profile image
carolek572CommunityAmbassador in reply toCwright170994

Thank you for sharing, Cwright170994 ! You have brightened my day! 🤗

AquaZumbaFan profile image
AquaZumbaFan

Great job!!

carolek572 profile image
carolek572CommunityAmbassador

Thank you for the wealth of information you have given us, irhunter . Keep Smiling :-D

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