thank you everyone💛!!! this really helped. i meant to respond to everyone-in case i didn’t I appreciate you all🙂

[HouseElfWon]

my husband doesn’t understand the complexity of MS fatigue and the idiocy of moving the finish line. i’m paying for it today because he took it to far over the weekend….

it’s hard to talk to him about it because he thinks he’s right 🙁

appreciate you guys❤️

[CatsandCars]

That's what we're here for. Next week we'll be venting to you about something! 😁

[Panda52]

my favorites are “ it’s not that hot. You’ll be fine. Or it’s not that long. You can do it,” I love him dearly and most of the times he is so supportive but sometimes I just shake my head.🤫

[Greentime in reply to Panda52]

Yes, the old pep talk! They mean well, but just don't get it.

[mrsmike9]

So you lay in bed or in front of the TV (you get the clicker) and he can do the housework, cook, laundry, etc. You are recovering. Next time you go to the neuro, have him come with you. Perhaps he'll listen to them. Good luck.

[CatsandCars in reply to mrsmike9]

Great point, mrsmike9! 😅

[KipAngCan]

Just yesterday my therapist at PT explained the “budgeting” system to me. Basically it’s set up like you start with $10 for the day and you have to budget your energy. For example, if getting out of bed and getting dressed costs $2 you have to budget the other $8 for the day. You can get some of it back by resting or, for example in the case of heat, drinking cold water or getting in AC. It’s an abstract concept to me yet but I’m going to see if I can make it work in some way. 🤞🏼

[Tazmanian in reply to KipAngCan]

Sounds very similar to the spoon theory

[KipAngCan in reply to Tazmanian]

I would be very interested to hear that too. My therapist was trying to give me some tools because I have to make a trip to TX next month and I’m scared to death about the traveling and the heat. I have no choice, my son is graduating from USAF boot camp and I have to be there. I just hope it’s not a total disaster as I’m mostly disabled and will be in a wheelchair.

[Tazmanian in reply to KipAngCan]

Look up (the spoon theory for MS) on the internet

[elaineinqueens]

I hear you on that issue! My hubby is incredibly supportive, but I do have to remind him on a regular basis about the fatigue, as well as what stress does to exacerbate my symptoms. Then he "gets it" for a while and then doesn't and I have to remind him again. I sometimes wonder if these types of lapses in memory/understanding come from their subconscious denial of the disease we have?