A Dmt someone posted about

Someone was having trouble with Ocrevus and switched to another DMT which I was unfamiliar with but which sounded interesting and haven't been able to find the post again, if this rings any bells would love to be enlightened, thanks all in advance for help and patience with a bear of very little brain

[Jesmcd2 CommunityAmbassador]

I'm switching, I just don't know to what yet 🫣 Neuro says Kesimpta or Copaxone. I'm saying no to Kesimpta. And pretty much on the side of no of copax. Trying to figure something else out 🙂 Otherwise blah! 🤣🤗💕🌠

[Hidden in reply to Jesmcd2]

I hear that this DMT choice thing although I am glad we have choices now still can be a little bit overwhelming

[Frances_B in reply to Jesmcd2]

Re Copaxone - has your neuro given any reasons for suggesting that you go onto one of the oldest and least effective of all of the MS meds?

[Jesmcd2 CommunityAmbassador in reply to Frances_B]

Yup, we have talked about it, and going to again next month and probably again before June when my next infusion would be due. 🤗💕🌠

[Mandymae5 in reply to Jesmcd2]

I would recommend Copaxon. I was on it for many years. Had no problems with my MS, did very well.The only reason I came off of it was because I was tired of giving myself shots. I changed to Aubagio because it was a pill which is what I wanted. My MS has done good with that. However due to having problems with my liver enzymes my doctor has taken me off to see if blood work is better having been off for 3 months.

[kdali]

I posted an article from MSelfie about it recently. I switched from Ocrevus to Mavenclad. The other name for it is cladribine.

[Jesmcd2 CommunityAmbassador in reply to kdali]

I'm hoping maybe the O will reboot my immune system? 🤔🤗💕🌠

[kdali in reply to Jesmcd2]

You deserve magic powers after all the nonsense you've been through!

[Hidden in reply to kdali]

Where do I sign up I am so ready

[kdali in reply to Hidden]

Hopefully Jes will tell us when she gets her magic powers! 🎉

[Hidden in reply to kdali]

I am putting in an official request even just a little bit would help

[Jesmcd2 CommunityAmbassador in reply to kdali]

Wishing on a star! 🌟 🤗💕🌠

[Hidden in reply to kdali]

Thank you I think that was what I was thinking of

[kdali in reply to Hidden]

You're welcome!

This one explains the medication, but very detailed:

gavingiovannoni.substack.co...

MSAA to the rescue! To the point, and has a video:

mymsaa.org/treatment/mavenc...

[CatsandCars]

I don't remember the post, but you could look up a list of MS meds and see what sounds familiar?nationalmssociety.org/Treat...

[Hidden in reply to CatsandCars]

Thank you I did try that, but being of very little brain I couldn't remember the name

[CatsandCars in reply to Hidden]

It was worth a shot, right? I hope you find the thread. 😊

[CatsandCars in reply to Hidden]

Does this list of threads help at all?healthunlocked.com/search/p...

[Hidden in reply to CatsandCars]

Thank you so much yes and I really appreciate you

[CatsandCars]

Happy to help. Especially if I don't have to get up from my chair! 😁

[Helpmeup]

Hi Formerbikeguy! Not sure if this is what you are looking for, but I found your post from 11 days ago titled "Ocrevus support" and there were a few DMTs mentioned that might be what you're searching for. There was Kesimpta, Briumvi, Rituxan, and Tecfidera. Do any of those ring a bell?

[Hidden in reply to Helpmeup]

Thank you for your assistance I had finally found it. But I really appreciate your feedback

[Cwright170994]

There's another DMT called kesimpta. It works pretty much the same way, it's just that you have to inject yourself once a month.Better than copaxone, where you have to inject 3 times a week and it doesn't work the same as the immunosuppressant meds. My 1st dmt was copaxone, and I still got worse! They then tried me on tysabri, but I am jcv positive with a high titre that would be harmful if I was to take a 2nd dose of it 🙄 so back on copaxone I went until I had a night in April 2021 where I had a status epilepticus event and wound up in hospital for 27 days. My husband had to bring my copaxone, self injector, and a sharps bin (because I didn't want to waste the NHS's sharps bins 😅), sign forms because the nurses weren't able to give me the injections as they'd never come across it before, the student nurses and doctors watched and asked questions about it, and I then got a call from my MS nurse, telling me my neurologist had enough evidence to get me on ocrevus! I just need to titrate off the steroids they had me on so my wbc count could come up again (steroids are an immunosuppressant 🤷‍♀️). Last year, I got a letter saying I'm eligible to start kesimpta, so I weighed up the pros and cons of it with my new neuro before starting it. However, I'm going back on ocrevus in March because I'd rather have a day of not being able to properly walk with the drip stand once every 6 months than having to inject myself 🫣 but, that's just me.

[Hidden in reply to Cwright170994]

I really appreciate your feedback and sharing that very personal account, and honestly of course different in some of the details mirrors my own experience in many ways thank you so much

[Cwright170994 in reply to Hidden]

No worries 🫂❤️ if you need any further info, you can dm me and I'll answer as best of my ability 👍

[Jesusfreak72]

Well, I haven't posted recently, but I did Ocrevus for several years. My body just wouldn't tolerate it anymore. When I told my doctor I didn't want it anymore, he put me on Kesimpta. It has been great. No side effects at all, and it's just a once monthly shot in the leg. I have PPMS, and although it's not actually for PPMS, it has worked really well for me. Hope this helps?

[Neworleanslady]

i liked copaxone but got a new lesion while on it. Hated the frequent shots though. Im on ocrevus and i think i like it. I didn’t tealize people are trying to get off it! My walking balance has gotten worse-

I was on aubagio for a while and it didnt work for me. Tried some others too