MRI Results

[Jesmcd2]

I had my MRI with and without dye on the 17th. My Neuro, says we want a stable MRI to go by. Me too! I got my results yesterday, and yea me! I have more lesions! Not only that, lm lit up like a flippen christmas tree! I have flares going on in my Cerebellum, by George. And in the Pons, which is new.

So much for a stable MRI😢 and does this mean ocruvus isnt working anymore? Or is it working, and it l could be 100xs worse?

I just dont know anymore!

I really hate MS,

Im going to go shove more marbles up my nose to fill up the spaces now! 🤣

🤗💕🌠

[erash]

Jesmcd2 😞Hang in there👊when do u follow-up neuro to c what ur next steps r?

[Jesmcd2 CommunityAmbassador in reply to erash]

Like a cat on a rope! 🤣 l saw him and his PA 2 diff appts. I have an O appt on the 27 dec. So unless l hear otherwise🤷‍♀️ 🤗💕🌠

[erash in reply to Jesmcd2]

frustrating 😵‍💫

[Jesmcd2 CommunityAmbassador in reply to erash]

Yeah, but we knew it was going to get worse🤷‍♀️ as dr n l

[Sweetheartonvdayl in reply to Jesmcd2]

Hi Jesmcd2 🙂I always say, when I get an mri, "at least nothing lit up" but I knew that anyway. 🤣😂🤣

🙏😺❤Lisa 💕

[hairbrain4]

So sorry to hear that! Sound like you could use a few days of total relaxation to calm those flares down. Prayers that those flares go away now.🙏🙏🙏

[Jesmcd2 CommunityAmbassador in reply to hairbrain4]

Im chilling with you right now luv! 🤗🤗 TY 🤗💕🌠

[hairbrain4 in reply to Jesmcd2]

Good cuz I need someone to chill with right now. I've been taking care of my husband after his emergency surgery on Saturday & I'm tired.🤪

[mrsmike9 in reply to hairbrain4]

Emergency surgery? What was that about?

[hairbrain4 in reply to mrsmike9]

Gallbladder surgery. The CT showed it was the size of two fists. And the surgeon said it was the biggest he had seen since he started practicing 41 years ago. & there were 2 stones that were 2.5 centimeters. My husband was also septic. They caught it just in time before the sepsis took over.

[mrsmike9 in reply to hairbrain4]

Wow! My last boss just had emergency gall bladder surgery which was not fun to recover from. So I really feel sorry for your husband. And now you have your fireworks as well. Goodness gracious. You both needs to have a movie marathon with your feet propped up. I sure wish you both the best.

[hairbrain4 in reply to mrsmike9]

We've been doing that but sitting makes my back hurt. If its not one thing its another that wants to mess up my day!😅

[mrsmike9 in reply to hairbrain4]

Oh dear. Lay on the couch??? Stand on your head???

[hairbrain4 in reply to mrsmike9]

🤪😂🥰

[tiffortat]

I really hate MS too, but I’m loving your sense of humor. The last line of your post gave me ideas…🤣

[Jesmcd2 CommunityAmbassador in reply to tiffortat]

A dear friend gave some to me, so l would never lose all my marbles! I have them in a jar to remind me to smile! You should get some, and say they are from me! 🤗💕🌠

[alsorenson in reply to Jesmcd2]

I go for thoracic and cervical MRIs this morning. Brain MRI on the 5th. I just put a marble in my pocket. It made me smile.

Thank-you for the marble.

Hang in there

[Jesmcd2 CommunityAmbassador in reply to alsorenson]

I havnt been here to ask, how did your mri go alsorenson ? Im glad you have a marble! 🤣🤗💕🌠

[alsorenson in reply to Jesmcd2]

Just got results, mris are stable, no new lesions. I chalk it up to keeping the marble in my pocket. Next up my second course of ocrevus.

Thank you so much for asking. Your original post was well timed for me.

I'm pulling for you along with lots of other folks.

[twooldcrows]

wait till you talk to the doctor...love you and others do too ...we know this goes on so just wait and talk to the doc....love and much happiness is there just look around ...loves...

[Jesmcd2 CommunityAmbassador in reply to twooldcrows]

🤣 My Neuro knows that l read it, and then will ask questions if l need to. 🙂 He has no problem getting ahold of me either. Thank You! Much Love! 🤗💕🌠

[bxrmom]

So very sorry that this is happening? Are they going to put you on a round of steroids to help stop the flare? Hugs my friend.

[Jesmcd2 CommunityAmbassador in reply to bxrmom]

I dont do steriods. 😐 They are bad, bad bad bad 🤣🤣 and to be honest l dont even feel like lm having any 🤷‍♀️ Only thing l cant do is side step anymore.. 🤣🤣 and l figure its cause lm old🙃🤗💕🌠

[CatsandCars]

That's hard news to digest, especially when you can't talk to your neurologist yet. I wish we were back in the days where you could call your doctor when you're worried and he could just talk to you! Medicine is so impersonal now. I know it's scary, but maybe you'll be one of those people who have lesions but don't get symptoms from them. Hang in there.

[Jesmcd2 CommunityAmbassador in reply to CatsandCars]

No symptoms, so lm calling it good! And it is, even when you do kinda expect but dont want accept it🤷‍♀️ TY 🙂🤗💕🌠

[falalalala]

I'm about your results.🤗

[Jesmcd2 CommunityAmbassador in reply to falalalala]

🤗💕🌠

[falalalala in reply to Jesmcd2]

I just learned to type today.😆

[carolek572 CommunityAmbassador]

Big or small marbles, Jesmcd2 ? 🤗

[Jesmcd2 CommunityAmbassador in reply to carolek572]

Im not wasting my Shooters up my nose! 🤣🤣🤗💕🌠

[Morllyn]

❤️

[Tazmanian]

Talk to your neurologist don't assume you know the answer get conformation good luck and I hope everything is ok

[Jesmcd2 CommunityAmbassador in reply to Tazmanian]

I talked to him🙂🤗💕🌠

[SandraKOE]

Before my last MRI’s my Neuro said we will go ahead with your next O infusion unless something shows up on the MRI. If something shows we will have to change your meds again. Keep after your MD. Enjoy a Merry Christmas & don’t lose your marbles. 🤣😀😊

[Jesmcd2 CommunityAmbassador in reply to SandraKOE]

I did enjoy my Christmas Thank You! 🤗💕🎄

[sashaming1]

The Neurologist could/should(?) recommend a different DMT that works better for you IMHO (Does everybody know that this means "In My Honest Opinion?" - it may be a common term these days).

[Brindisi1]

.Is there any alternatives to prednisone for the flare. I know prednisone affects bones & messing mine up. Maybe nonprescription.Keep your marbles & prayers for your recovery

[Jesmcd2 CommunityAmbassador in reply to Brindisi1]

There are! And l would have to look it up because l forgot what they are... 🙊 but when l talked to my neuro on friday, he felt that it was prob over, as it was on the 17th 2wks, and no symptoms🙂🤗💕🌠

[Greentime]

From what I have read here, Ocruvus isn't a mickey mouse drug. I sure hope the answer is that it is working for you and that the lesions stay quiet and disappear!!

[kdali]

He said stable, Jes! I don't think MS heard him 😭 I'm very sorry for your terrible news, and it sounds quite ridiculous 😵‍💫 I don't know anything, but I'm thinking not going back to copaxone was probably a good idea. Could you be making antibodies to Ocrevus 🤔 I hope your follow up appointment goes well, and until then you are well entertained with your marbles and humor 🥰🙏

[Jesmcd2 CommunityAmbassador in reply to kdali]

Humor is the only thing that gets me thru sometimes! 🙃 Cause this MS thing is about the stupist thing in the world! Besides, its either humor or anger. And no one wants that... 😐🤣🤗💕🌠

[Mark1499]

I’m sorry to hear your DMT isn’t working anymore. Hope they find something that works. My neuro knowledge is limited to where my black holes are. Can you explain the pons thing? Enjoy your posts you seem to have a sense of humor!

[Jesmcd2 CommunityAmbassador in reply to Mark1499]

"Its part of the brainstem, it helps manage your breathing, balance, hearing and more." Per Cleavland clinc! And TY! 🤗💕🌠

[Mark1499 in reply to Jesmcd2]

Thanks that may help explain my balance issues.

[Jesmcd2 CommunityAmbassador in reply to Mark1499]

my.clevelandclinic.org/heal... you go! I will stop being lazy! 🤣🤣 There are alot of places in the brain that affect balance tho. The brain is so complex, and all connected, 1 way or another. (My opinion only)🤗💕🌠

[mrsmike9]

Oh, Jesmcd2. I'm so sorry to hear of this. Are you sure you didn't ingest some Christmas lights?

[DM0329]

So sorry to hear of your MRI results. Please know that I will be keeping you in my thoughts and prayers as you search for answers. 😇🙏🙂🤞

[Helpmeup]

Wow, that's a lot to take in. So sorry you are having to deal with this. Were you able to discuss it further with your neuro? I totally agree with you. It's hard to know if it's the Ocrevus that stopped working of if it's just M.S. doing what it wants to do. Are you going to continue the O? I'm also with you on the steroids. Over the years, I have had five rounds of massive steroids, and I have severe osteoporosis now thanks to Solu-Medrol! Take care! Sending a big hug your way!

[AquaZumbaFan]

dang it Jesmcd2! I’m so sorry you are lit up like a Christmas tree.. that was not the results you wanted to hear. They are asking me to get my thoracic spine done now as i have been having more falls and Uthhoff phenomena this year… I already had my brain, C-spine, and lumbar spine done.. I’m going in on Wednesday to get her done. I will pray that they help you find the right path to take.. sending up healing thoughts and good vibes🙏🏼🤗

[Jesmcd2 CommunityAmbassador in reply to AquaZumbaFan]

Please let us know how it goes AquaZumbaFan 🤗💕🌠

[AquaZumbaFan in reply to Jesmcd2]

Thanks friend.. will do.

[AquaZumbaFan in reply to AquaZumbaFan]

Apparently I dodged a bullet this time with no new lesions causing my troubles.. but what I got instead was a laundry list of bulging, extruding discs and multiple levels that weren’t there 11 months ago. Also, my spinal cord is compressed in three different places and flattened in one area and that is just a thoracic spine… Lol I am fortunate that I already had a pain management appointment this coming Tuesday so maybe they can give me some ideas of treatment options that are not surgery! I am considering all this a huge blessing, but I am so sorry that you’re going through some active lesions. There’s no stress in the world like it. Sending you get the healing thoughts 🤗

[Jesmcd2 CommunityAmbassador in reply to AquaZumbaFan]

So sorry to hear about your back! I know how painful it can be! I have had 2 back surgerys, and neck surgery... if you do need it, listen to your drs! Even if you dont want to! It pays off in the long run! 🙂🤗💕🌠

[AquaZumbaFan in reply to Jesmcd2]

Thanks for the good advice.. I have a really good doc.. hubby has worked for years in the OR with directly doing pain management.. he wanted me to consult quite a while with him but I was determined to try PT for a long while first.. other docs thought it was ortho in nature..

[GratefulNeeC]

I know that's the news that we dread; unstable MRI!!! Talk with your Doc and see if changing your DMT could make a difference. Also, (only if feel up to it) get a second opinion from another Neuro and see what their assessment thoughts/feeling may be? 🙏 Praying for you and keep me updated. Blessings and Support Always,. NeeC

[Jesmcd2 CommunityAmbassador in reply to GratefulNeeC]

TY 🤗💕🌠

[Mark1499]

Not sure what the guy meant when he said Christmas lights but I thank you for the suggestion on the Cleveland Clinic. I’m really searching for stem cell treatments. I’ve seen some incredible results. Thx