How are you?: How are you and your MS... - My MSAA Community

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How are you?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’42 Replies

How are you and your MS doing? How are you doing? Seriously, l want to knowπŸ™‚

πŸ€—πŸ’•πŸŒ 

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Jesmcd2 profile image
Jesmcd2
CommunityAmbassador
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42 Replies
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positiveness profile image
positiveness

I have just been tired lately. But who in the world isn’t right. But really, I don’t do as much as I used to around the house. I don’t like it! I want to do so much more.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply topositiveness

I hear ya! It seems to take alot more energy these days to get anything done. Is it because of the MS? Or covid weary do you think? Have you tried anything for it? Talk to your dr... MS Fatigue is real !! πŸ™πŸ€—πŸ’•πŸŒ 

Tazmanian profile image
Tazmanian

I'm tired and I can't walk very well

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toTazmanian

πŸ˜΄πŸ€— Does your Neuro know about this? πŸ€” They should be able to give options? πŸ€—πŸ’•πŸŒ 

Tazmanian profile image
Tazmanianβ€’ in reply toJesmcd2

Ty

Sandydemop profile image
Sandydemop

thanks for asking Jes! i just got turned down by my insurance for Ampyra/ Dalfampridine. ARG!!! Otherwise good. my balance is getting better with practice.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toSandydemop

Can your dr push it thru? πŸ€” Sometimes ya get luckyπŸ€£πŸ˜‚ Way to go on the balance!!! πŸ™ƒβ˜ƒοΈπŸ€—πŸ’•πŸŒ 

Sandydemop profile image
Sandydemopβ€’ in reply toJesmcd2

😍πŸ₯°

twooldcrows profile image
twooldcrows

this is so perfect and loving ..thank you for it ...i am doing just fine ....love and much happiness to all of you ...

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

Im always happy to hear that your doing well! πŸ€—πŸ€—πŸ’•πŸŒ 

twooldcrows profile image
twooldcrowsβ€’ in reply toJesmcd2

we don't need to read about all of the bs we go thru all the same .hahhahahaha....loads of love...but yes just that one time of fainting for no reason ...ahhahhahahahaha...have a great day ...we are here for each other ,thank you for checking ...i do feel for others that are having lots of problems...so sorry ...

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

Fainting? πŸ€” Are you alright? πŸ™πŸ€—πŸ’•πŸŒ 

twooldcrows profile image
twooldcrowsβ€’ in reply toJesmcd2

so far okay with nothing that they know of except when i came home for our beach trip we had to drive for a couple of hours of smoke for a major fire on the way home that we were told was under control so we could go home ..well have way home it was not under control so when we got home i was sick so bad i didn't take my meds for i didn't feel like it and didn't think it would matter much ...well one med i can't just stop so they figured that is what caused this ...i was to keep me from having seizers from the MS so now i am on a stronger dose so i will find out more in a month....thanks for asking ...i don't have much that goes on so it was a shock ...take care of your self and have a great day and great Christmas or holiday if is that ..love and happiness...

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply totwooldcrows

Aww lm so sorryπŸ€— yes its very important to keep taking your meds... and lm so glad your alright! Even driving thru all the smoke!

You have a Merry Christmas! πŸŽ„πŸ€—πŸ’•πŸŒ 

hairbrain4 profile image
hairbrain4

Thanks for caring! I'm doing great, MS is in remission. I have no pain, no numbness, no stiffness or muscle cramping. It's as if I don't have MS at all. It's been a while since I felt this way & pray it stays like this. I see my neuro on Monday & can't wait to tell her especially after seeing her 6 months ago when I was having a lot of cognitive problems. But that is also subsiding. I still have some memory problems but that could be from permanant mylan damage, oh and of course doorways. Doorways erase your memory as you pass through them. Sometimes you get it back if you back through & then make a conciouse effort to remember as you re-enter the room.🀣 Again thank you for caring. It puts a smile on my face to know that people you aren't related to or know really well, care.❀️

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tohairbrain4

Thats Great!!! Im so happy for you! πŸ€—

I found a trick with the forget me doors... l call the Forget Me Not Doors... l say what l need to remember as l walk thru.. "Forget Me Not the pen or trash" πŸ€£πŸ˜‚πŸ€£ lt works for me! πŸ€£πŸ€—πŸ’•πŸŒ 

hairbrain4 profile image
hairbrain4β€’ in reply toJesmcd2

Thank you what a good idea, I'll have to try that!

Morllyn profile image
Morllyn

Doing ok, just some pain today.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMorllyn

πŸ€—πŸ€—πŸ’•πŸŒ 

Morllyn profile image
Morllynβ€’ in reply toJesmcd2

Thanks for asking ❀️

falalalala profile image
falalalala

I'm doing alright, thanks.

Been having trouble keeping my BFF on the pedals of the exercise bike but hub is making some alterations for me.

Things could be worse

How are you doing?

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tofalalalala

Bigger pedals?πŸ€”πŸ˜‚ Ya nut! πŸ€—πŸ’•πŸŒ 

falalalala profile image
falalalalaβ€’ in reply toJesmcd2

Nope. Unfortunately they angle in & my ankle hits the crank and my heel slips off.

Hub is making some modifications. :)

NorasMom profile image
NorasMom

I'm okay for the most part. A lot more tired this year than last, and my good hip has been giving me some trouble this week, but I was still able to go into the cellar today. If I could just get rid of half my family, my life would be quite peaceful!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toNorasMom

Im sorry your hurting! Hopefully you will feel better soon! πŸ€—

They make a button on the phone for family like that.. l call it The Sound Of Silence! πŸ€£πŸ˜‚πŸ€£ thats putting it nicelyπŸ™‚πŸ€£πŸ€—πŸ’•πŸŒ 

NorasMom profile image
NorasMomβ€’ in reply toJesmcd2

lol. I don't answer my phone. But I did close my Skype window. πŸ˜†

carolek572 profile image
carolek572CommunityAmbassador

Can’t complain, Jesmcd2 , well, I can but I am tired of listening to the same old whiny song! πŸ˜‚

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tocarolek572

πŸ€£πŸ˜‚πŸ€£β˜ƒοΈπŸ€—πŸ’•πŸŒ 

Elizt3 profile image
Elizt3

thanks for asking. I am realizing that I am someone who used to work full-time and happen to have MS. But in the last year or more, I’ve found that I am someone who has MS and does my best to work full time. MS generally is in the forefront of my mind because of sx including pain and balance symptoms. I used to always think I would work till 65 or 70 years of age because of how much I loved my job. Definitely not gonna make that.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toElizt3

I have to say l loved my job also! So l can understand how you feel. Its not an easy realization to have to come to terms with. Sounds like you still have time tho! Keep your head up! πŸ€—πŸ’•πŸŒ 

whwiechm profile image
whwiechm

I'm doing a little better now that the weather is colder, and perhaps the Ocrevus is holding MS at bay. It's still very annoying to me that I have so much trouble doing things I could do easily before, or not being able to accomplish what was simple for me in days gone by. But life goes on, and I'm not complaining because I still have life, friends, and a loving family. I always found it odd to me that a symptom of MS is depression. I can understand why this is true after diagnosis, but not exactly as a symptom. Basically, I am a happy guy and almost always have been, so that is one symptom I have never had, thank the Lord.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply towhwiechm

Im glad you have such a great outlook! πŸ€—πŸ’•πŸŒ 

kdali profile image
kdali

MS is doing better than the rest of me, thank goodness! Stressed, depressed, and have no time for moping!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

You know whats going to happen if you dont take some time for yourself... πŸ™πŸ€—πŸ’•πŸŒ 

kdali profile image
kdaliβ€’ in reply toJesmcd2

Santa will bring me coal? 🫣

Sandydemop profile image
Sandydemopβ€’ in reply tokdali

Coal turns into diamonds

bxrmom profile image
bxrmom

My MS is doing okay as far as I can tell. Like many others have said already, just a lot more tired the last couple weeks that I normally am..not sure what's up with that. I have my 6 month recheck with yet another new Neuro on Wednesday because the one I was with changed departments and is in the ER now from what I understand. Seems about every couple of years I end up with a new neuro. This time it is a woman, all others have been men.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tobxrmom

You have been thru a few neuros since lve known you! Ask her if she is going to stick around, if not, leave.. πŸ€£πŸ˜‚πŸ€£ jking πŸ€—πŸ’•πŸŒ 

Kenu profile image
Kenu

Fatigue is my biggest enemy, but I push myself through it. I feel very fortunate after 28 years to still be able to do what I do πŸ™πŸ‘πŸΌπŸ˜‰

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toKenu

You are a rock star! β˜ƒοΈπŸ€—πŸ’•πŸŒ 

Cutefreckles72 profile image
Cutefreckles72

Thank you for caring and asking. Me and my MS friend are doing well. Today, I found out that I don't have blood clots in my legs and feet, and I must purchase tighter compression stockings. No surgery is needed. I am very thankful for that. And how are you and your MS doing?

mrsmike9 profile image
mrsmike9

I'm not to bad. Probably will be even better once the stress of Christmas is over and I have the week off work! I will have a week of sleep! Woo-Hoo!

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