Ocrevus “crap gap”

[Tuliplover]

Hello and thank you to everyone who has posted about “crap gap” in the past! I have been searching & reading your old posts.

This is my first time to experience what I am assuming is Ocrevus “crap gap”. I’m due for my first full dose infusion in 2.5 weeks. I experienced something similar on Tysabri although it was only a few days before and 1-2 days after each Ty infusion. I am emotional & overwhelmed thinking that this will happen every 6 months and last for so long each time.

Questions…

What symptoms do you normally experience during the crap gap? Can crap gap cause any of your normal MS symptoms to worsen?

I started feeling “off”yesterday, but today I feel terrible… fatigue, increased L side (my affected/damaged side from bad relapse) numbness, tingling & weakness in UE, LE, & face, as well as headache and dizziness.

To those of you who are on the 5 month dosing interval, what did you have to do/say to your Dr. to make it happen?

Thank you 🧡

[twooldcrows]

you just need to call the doctor and let them know how you are feeling ,not sure what else to do but to call your doctor ...good luck hope all works out for you...

[tompumo]

Ocrevus slows progression of the MS. It doesn't repair nerve damge. I've been on O for 5 years - I was on Copaxone begore that. I don't think the 'crap gap' is a real medical thing, but rather a perceived 'need'. For me, meditation and some exercise helps carry me through.