Mavenclad: Has anyone been on Mavenclad? I... - My MSAA Community

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Mavenclad

draw1981 profile image
7 Replies

Has anyone been on Mavenclad? I'm needing to change my treatments and this is one of the options my doctor gave me.

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draw1981 profile image
draw1981
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kdali profile image
kdali

Welcome! I expect to be starting Mav soon! My previous med was Ocrevus, and had considered S1P's. We have 2 members that I'm aware of who have taken the first year of pills. There's a Facebook group with new people each week, and some who are on years 3-5. I'm sorry you're having to change meds, it's always an anxious time for me and usually much worse than actually starting one.

Raingrrl profile image
Raingrrl in reply tokdali

Hey kdali do you know of any data from patients switching from a Ocrevus to Mavenclad? My neuro doesn’t know of any and I haven’t found any so far.

kdali profile image
kdali in reply toRaingrrl

A month or two ago there was a small one mentioned in a Substack article or MS Selfie, but only 14 people. I can't find it now and don't remember it providing any decent information except they switched before I am going to (x months after last infusion).

Raingrrl profile image
Raingrrl in reply tokdali

Thanks. It’s so frustrating. I don’t have to make a decision for awhile thankfully. First the IVIG treatment needs time and I need to get rid of the infections I’ve been dealing with for over 5 months.

kdali profile image
kdali in reply toRaingrrl

Jeez 😞 I hope the IVIG speeds your recovery along 🙏 MS is fun all by itself, so I feel for you having infections over and over as well 😱

StayStrong3 profile image
StayStrong3

I'm currently on it. My first round was last year. I highly recommend it. Taking my 2nd round next month.

Kjm761 profile image
Kjm761

Me. Had my first year of doses this past January and February. I feel way better than before! I was on Aubagio before I switched and had no idea how bad it was making me feel.

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