PoNS Device Improves Walking Skills Early-on, New Data Show

[positiveness]

So not many people have heard of this and I am trying to spread the word as well as I can. It sounds like it could really help us MSers with progressive forms of MS. I know I would like to try it. However, not even MS clinics have heard of it yet.

[Raingrrl]

There is a Canadian M.S. blogger that was in a PONS trial up there and she feels it has improved her walking. She still walks with aids but has greatly improved her walking speed. She is covering the same distance almost 50% faster. Obviously it’s the experience of one person but it’s interesting.

[erash]

I read about PoNs 5-10 yrs ago in a book by Norman Droige. At that time it wasn’t available except in research studies. It does seem very promising. Please let us know if anyone tries it.

[positiveness in reply to erash]

Yes, and I can’t wait to spread the news.

[goatgal]

MSNewsToday has published several reports on the device. Since it isn't something that we MSers can order online or buy over the counter, it won't be widespread until those who treat MS patients become more informed. It sometimes seems as if those of us with MS are more widely informed about the field than those who have clinical expertise.

[Ontheroadagain4now]

POnS has been approved for use in the US by the FDA. The problem is that is is to new to be covered by insurance companies or Medicare. The mouthpiece costs $500 and the device you wear around your neck is $5000. The mouth has to be replaced every three months. The company owns the POnS device will send a person out to your Physical Therapist to train them on using the device. It has to used with the Physical Therapist.

I want to try it but I don’t have $5000 to try it and see if it will work for me. Hopefully, as more data becomes available, it will be covered by insurance companies.

[Royjr]

Sounds promising but unfortunately I don’t think it’s approved in the US and FDA approved. I know it’s approved in Canada at a high price tag.

[Raingrrl in reply to Royjr]

It’s is approved by the FDA. neuronewsinternational.com/...

[BlanketTime1]

i'm going to ask my neuro about this the next time i go. thx for sharing!

[positiveness in reply to BlanketTime1]

You are very welcome and just prepare yourself if your neurologist doesn’t know about it. Many places I called hasn’t heard of it yet. Which I think is sad. Many of us with progressive MS would like to try this innovative device.