Hi friends, please pray for me. I posted earlier in the week that I was having difficulty after my Rituximab infusion last Friday. Well, I haven’t been feeling well since. Today, I felt as if I had 50lb weights on each leg. I began having difficulty walking, so off to the ER I went. Everything is normal! The ER dr had no clue about MS, but luckily I asked him to page my neuro. Basically, my neuro said everything “should” resolve on its own and it isn’t a relapse, but most likely residual from past damage. So as of now, I have no answers and I can still barely walk (I was sent home with a wheelchair ☹️). If you’re able, please pray I will improve.
Thanks,
Jessica ❤️
Written by
Jer29-11
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i am so sorry your still feeling so bad....take care and may it pass quickly ....many prayers for a fast recovery from what ever is bothering you ...love and happiness..
Prayers for your recovery! It's so hard to wait it out but hopefully you 'll see improvement very soon. Please keep us posted on how you're doing. 🙏 👍 😘
I will be in prayer asking God to strengthen and comfort you during this challenging time. Believing God is able to do just what he promised. God bless🙏🏾
Hi Jessica, I had similar experience after ocrevus infusion. First my feet felt heavy and after 5. dose started to affect my hands also. It went much worse when I continued doses. So eventually I decided to change milder drug (pills) Neuro couldn’t say what caused this.. My guess is spinal cord plaque was affected too much in this infusion. I wish good luck and hopefully it gets better overtime.
I'm sorry to hear you had that kind of reaction from the medicine. Praying for you that you have a quick recovery from this. I can imagine how stressful this is having to be sent home with a wheelchair. It's good to hear it should only be temporary and that you recover quickly.
I too have "relapses" from old "damage". They don't show up on the MRI even with contrast. I have many old damage spots.. and many flare up.. but not for long.. only on average for me is about 2 weeks at most.. anything can trigger it..
i'm quite familiar with the blank panicked stare of a&e doctors. i hope your neuro is right and you improve. i remember the first time i sat in a wheelchair. it broke my heart, but now when i'm going long distances, i make sure my wheelchair is on board. it helped me to think of the chair as just another mobility aid so i could keep doing the things i love.🤗
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Neuro visit - Ocrevus and Botox for spasticity
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