Aubagio: Anyone on aubagio, if so what has... - My MSAA Community

My MSAA Community

9,052 members20,784 posts

Aubagio

Blue000 profile image
23 Replies

Anyone on aubagio, if so what has your experience with it been like?

Written by
Blue000 profile image
Blue000
To view profiles and participate in discussions please or .
Read more about...
23 Replies
Kenu profile image
Kenu

Was on Aubiago for three years and worked great 👍🏼 No new lesions and no side effects 👍🏼. Good luck and hopefully it works well 🙏😉🐾🐾

Blue000 profile image
Blue000 in reply to Kenu

Thanks

Neworleanslady profile image
Neworleanslady

I didn’t do well on it. I was on it for 5 months and my symptoms felt like they kept getting worse, e.g., walking, urination, vision, fatigue. I complained so much the whole time to my doctor that she switched me to another dmt. I didn’t get any new lesions that were observable on an mri that i know of, but idk because I don’t think i had an mri right after trying it.

Blue000 profile image
Blue000 in reply to Neworleanslady

Thanks trying to decide what to do

Rocko1021 profile image
Rocko1021

I’ve been on Aubagio for 3 1/2 years and been having same problems as Neworleanslady and I’m going to try Kesimpta and hope it works better than Aubagio.

Blue000 profile image
Blue000 in reply to Rocko1021

Thanks,hope the new media works better

CV97 profile image
CV97 in reply to Rocko1021

I took Aubagio for about 2.5 years with similar problems. Switched to Kespimta this spring. So far, I'm satisfied with it, but it's too early to really evaluate effectiveness.

FearlessMsMimi profile image
FearlessMsMimi

I’ve been on Aubagio for 5 years and this has been the longest on a DMT in 20 years. I’ve been on 6 others prior to this. New lesions have been minimal, exacerbations fewer. I have them but they are on my old lesions. MRI’s have been clean for new lesions.

Blue000 profile image
Blue000

Thanks,glad to hear that. I want to change to an oral med and my doctor recommended it.

TwinA profile image
TwinA

Hi Blue000 , I’ve been on Aubagio for 8 years (wow!) after 7 yrs of strictly Homeopathic and natural remedies to detox etc. A relapse in 2013 directed my doctor to Aubagio and been on it since. MRI’s show “no significant change…” minimal side effects… some hair loss but none that showed. Easy to take and I’ve learned over the years that it isn’t horrible if you miss a dose or even if you go several days without say when insurance change causes lag. One on one nurse assured me I’d be okay.

Blue000 profile image
Blue000 in reply to TwinA

Thanks very helpful!

mrsmike9 profile image
mrsmike9

I've been on it for most of my MS life. Love it! Easy to take, no bad reactions, and so far (knock wood) my MRIs have been pretty stable.

Blue000 profile image
Blue000 in reply to mrsmike9

Thanks, been on copaxone for 15 years,running out of injection sites and had a new lesion on my MRI. Time for a new med!

hairbrain4 profile image
hairbrain4 in reply to Blue000

I was on Copaxone for 10 years & it worked great, but like you ran out of places to inject, & it started leaving knots on my hips. I changed to Ocrevus & it worked great for the 1st year & then stopped working at all with the last infusion in April.

Blue000 profile image
Blue000 in reply to hairbrain4

Thanks for sharing.

Humbrd profile image
Humbrd

I have been on aubagio for 3 years since I've been diagnosed. It's easy because it's just one pill a day. The only side effect I had was in the beginning with some hair thinning that lasted a couple months but it all grew back. No other side effects and I have not had any new lesions. Hope you find what works best for you.

Blue000 profile image
Blue000

Thanks,was wondering about the hair loss.

stalno profile image
stalno

I have been on aubagio for several years after having switched from tecfidera. I've had no issues and everything is ok.

wolfmom21fl profile image
wolfmom21fl

I was on Aubagio for a short time and am about to restart it. Had no issues with it but I know it can affect your liver. You will need to have liver panels done every month for at least the first 6 months you are on it

Blue000 profile image
Blue000

Thanks for the information.

drnikki profile image
drnikki

I have been in it for about 4 yes. love it . keeping my MS in check. Good luck!

drnikki profile image
drnikki in reply to drnikki

4 years

Blue000 profile image
Blue000 in reply to drnikki

Thanks I appreciate your help.

You may also like...

Aubagio side effects

call. For those of you that have taken Aubagio, did you experience side effects and how long did...

Change from Copaxone to Aubagio

okay, and like the disability progression claims for Aubagio but would like to know of anyone's...

Switching from Copaxone to Aubagio

redness). Aubagio has potential to damage liver and thin hair. Not too appealing but they say it...

Aubagio & high blood pressure?

I’m wondering if anyone on Aubagio has noticed that they now have elevated blood pressure. I got a...

Calling Former & Current Aubagio Users

horrible diarrhea, etc. Has anyone stopped Aubagio at age 65. My former neurologist said that MS...