Hi

[Snunez2580]

Hi, my name is Sheila, I am from Puerto Rico. About 7 months ago my 10 year old son was diagnosed with Multiple Sclerosis. I am here to learn more about the condition.

[jimeka]

Hi Sheila, welcome to the forum. I am so sorry that your young son has ms, I hope that you can feel the support that we can all give you. I must admit that I do not know much about paediatric ms, but maybe we can all learn together. Blessings Jimeka 🤗

[Snunez2580 in reply to jimeka]

Thanks you

[Snunez2580 in reply to Snunez2580]

Thank you

[CalfeeChick CommunityAmbassador in reply to jimeka]

jimeka great response!

[Mayteer]

Hi Sheila. I'm from Puerto Rico too. I have MS and I'm the support group leader for Puertorriqueños Unidos por la Esclerosis Múltiple. Contact me if I can be of your service. I'll be glad to help!

[Snunez2580 in reply to Mayteer]

Gracias, mi email es [e-mail] por si me puedes dar más información sobre el grupo.

[Mayteer in reply to Snunez2580]

Si claro. Te enviaré un email desde [e-mail]

[Mayteer in reply to Snunez2580]

Hola Sheila. Te envié el email, no sé si lo viste? De todos modos comunícate conmigo cuando quieras para lo que necesites. Cuídate mucho y déjame saber si puedo ayudarte con algo. Bendiciones!

[tombouy46]

Wow. 10 yrs old. That's the youngest that I've heard of being diagnosed. But hes in great hands these days. They have come out with so many new meds. And I believe its aimed at all the younger people which is fantastic. There making strides everyday. Someday in the not to distant future hopfully they'll have a cure for this curse. I was diagnosed back in 82 or 83. Long long time ago. I've done pretty dam good up till maybe 10 yrs ago. My timing is horrible. The last 3 yrs have been tough. But hey. I'm not complaining. By the way. I was born in Puerto Rico back in 1959. At Rammy air force hospital. my father was stationed there. We spent 2 or 3 yrs there. I cant think of the area we lived. If we talk again I'll get my birth certificate out. I know it says it on that. It's late and I honestly dont feel like climbing over to the other side of the room to get it. I talk to a couple of people on facebook who live in Puerto Rico. Small World. Not really. Just felt like squeezeing that in there. Just keep up with all your sons doctor appts. I will say a prayer. But odds are in his favor because we have such incredible Doctors, Research People, The Technology these days is just incredible. Ok. Dam. Its after 4 am. I need to try and get some sleep. Hope to talk soon. My name is tom from Boston. Good Night

[Snunez2580 in reply to tombouy46]

Thanks, rest

[goatgal]

One of the best ways to learn about MS is to take a free online course from the University of Tasmania (in Australia) the next time it is offered. The course runs for several weeks; once enrolled, you can access each week's session at times most convenient for you. Look on the web for these sites: menzies.utas.edu.au and ms.mooc.utas.edu.au. There's probably a sign up to become notified when the course starts again. In the meantime, the most accurate information about Pediatric MS can be found at sites with .gov in the address and at the MSSA (MS Society of America) and NMSS (National MS Society). Please let us know how we can help.

[Snunez2580 in reply to goatgal]

Ok, thanks for the information

[Frances_B in reply to goatgal]

The course is running at the moment but because it is already 4 weeks since it started you can no longer register for the current course. The next one is scheduled for mid- March 2022

[goatgal]

I was so glad to see you have support in Spanish and from someone who knows your culture and challenges. I wish you and your son all the best!

[JSSimp]

Prayers

[MarkUpnorth]

Hola! Welcome! I'm an old fart. Was diagnosed early 30's. Now in my early 60's. A long troublesome journey, BUT, I have survived, and doing Very Well (considering everything).I've gone thru, even "comatose" (severe brain fog common to M.S.), a couple years, all but crippled several years too, but I never stopped fighting. I'm "disabled". I'm not whom I used to be by any means. I ran a foreign fortune 500 manufacturing plant in Mexico. I owned and ran technical companies in the U.S. for years and years, But this disease eventually did that all in. I finally after many years of coping with M.S., retired to disability. But I never stopped fighting the disease. I had the best M.S. Neurologists in the U.S. I did all the best Disease Modifying Treatments. I went down hill with time. I finally reached a point where the M.S. specialist neurologists told me to stop the DMT's, as they weren't helping, and my 2-1/2+ years of flue like symptoms that resulted from the DMT's that developed after years of DMT's weren't worth it, as I was progressing poorly. So, I slipped into "coma" )severe brain frog ) a year later, for years. Still a fighter, I figure out if I stopped eating, I would not go comatose. So I stopped eating till late, when I then would drift off into la-la land. BUT, then I discovered if I juiced, fruits and veggies, using a $30 juicer from the bargain store, I didn't go comatose every day! I did that for a couple years. I upgraded to a VitaMix to get some bulk fiber. Still Okay. Now I'm on non-processed foods. Eat lots of fruits and veggies, with small amounts of lean meats, fish, and seafood. I finally lost my cane of 5-1/2 years, needed to walk without falling. I do 10K steps a day with a pedometer, for at least a half decade.

Your son cannot overcome M.S., but can beat it, eating healthy! Remember. Processed foods, especially those including all those things you never heard of, don't understand..., all those companies I worked for for years in their food items, avoid them like poison, as they are to this and many other auto-immune diseases. Go to xyz or zyx, the few places in the world where processed foods don't exist, and M.S., or the other auto immune diseases don't exist. not tooth brushes, or cavities. Just a few tid-bits of of years of research.

My Word of Advice: Eat Healthy (100%) till you reach your goal. Okay, I will eat my previously favorite food, Pizza, once or twice a year as a special treat. It does not kill me, anymore.

There is no medical evidence to several of the things I mentioned. Gut bacteria which I heard of from a friend yeas ago...., on and on, now makes sense.

[Amore55 in reply to MarkUpnorth]

Helpful info, thanks!

[Snunez2580 in reply to MarkUpnorth]

Thank you very much for the information, it is very valuable and very helpful. I hope it continues well.

[CalfeeChick CommunityAmbassador]

Hi Sheila , Welcome to our group! And your son also 😄 We arehere for you both. Read along feel free to ask questions or make comments. Two suggestions for “Newbies” Read our guidelines on the upper right corner of your page & check The MSAA site! So many helpful areas there! 😊😊

[Snunez2580 in reply to CalfeeChick]

Thank you for the information😊

[twooldcrows]

welcome and i bet there are some in this group that can help you ..we all try to help with anything that can help someone feel a little more at ease living with MS...love and much happiness ...

[Snunez2580 in reply to twooldcrows]

Thank you

[BlanketTime1]

welcome!🤗