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Don't get to this point, for the safety of others!π€£
How is your MS doing? How are You doing? Are you new here, and new to MS? We hope that you will speak up, share your concerns, or questions... We have a lot of Great Caring people here that might be able to help you!
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wow you are going to scare the new ones...ahhahahhahahahhahahha
ππ€£π naw! π€ I don't think so! They should just know who's crazy right off the bat!ππ€£ππ€£π€ππ
Thatβs hilarious! Iβm good! Iβm trying to self rehab my legs and itβs going to be slooooow. Iβm low on bone and muscle mass, so the bar for fitness is pretty low over here π€£ Iβll see my regular neuro soon about restarting O, and then going on a vacation! Iβm over the kids colds. Thereβs a little sick one next to me now π Everyone had a great week at school this week though π How are you doing? You get the next med figured out?
Aww I'm sorry the lil bits have been sick!π I'm trying to motivate myself to do steps, all the hospital and being sick did a number on my thighs. So we can help each other out!ππ€£π The K not working for you? Had video appt yesterday with neuro, he wants me to have an MRI in Dec, before next O in Jan and take it from there. π€ππ
Ty! Right? Happens fast! I hope you can recover them quickly. Yeah π€£ my squat attempts are comical. Nah, I had side effects that got worse with each shot, so Iβve been off for K a few months now. I hope these kids germs are done before O. Thatβs good to have a plan! Maybe the next scans will be good π
They don't call um lil petre dishes for nothing you know!π€£π ππ So sorry about the side effects! That stinks π Squats? π€£ππ€£ Now that is funny!ππ€£π No! Just no! ππ€ππ
Hah squats whatβs that?
The last time I ran out of spoons I fell and sprained ankle. π± I have finally learned to stop before completely running out of π₯π₯π₯
it's hard though. i think sometimes it feels so good to do anything, we just overdo it. also, it can be hard for me to tell what is the usual fatigue (especially when ataxia is acting up) and what is pushing myself too far. i always figure it out, but usually by then i'm ready for the knivesππ.
Tis the key, figuring it out! I still don't!π€£π
Oh, I ran out of spoons alright. Black and blue, both hips are so sore, nerve pressing on bladder. Just had a 2 hour round trip for a Covid test, that took 20 seconds, $100 later. Now in isolation until I have the op on Monday 13th. 2hour round trip again, 30minute procedure, unless they choose to sedate me, whoopee , as long as they get it all first time. Prayers appreciated please. π π¦
So sorry you have to go through all that. Prayers for speedy recovery!
Thank you. Much appreciated π
Get well soon and please! keep your spoons in line. I have trouble myself knowing when to say no more. But as we have learned the hard way, pushing through without spoons is dangerous and can be painful. Wishing you all the best. Speedy recovery.
Thank you π€
sending youπ€π€
Aww, thank you π€
~May You Be Wrapped In The Wings Of Angeles My Friend~π€ππ
Jesmcd2 Oh man! spoon mania!! i discovered that when i run out of spoons before i have finished whatever i'm doing i get really angry! happened just today. And yesterday. Maybe tomorrow? I have to work with the spoons that are allotted to me. Knives would be a bad idea when i'm in this state of mind.
ikr? i get super angry... and only later realise why.
BlanketTime1 whatβs ikr thanks Iβm not angry right now it passed. Thank Gd
'ikr' means 'i know right?'
thanks got it. I'm over 40. sorry.
π it's ok Sandydemop .
Yes. Learn something new every day.
Ikr! Then I can go into a spin, where no one is safe!π€£ππ€£π€ππ
YESπ
I would go to the forks before the knives.. haha...
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Ever been stabbed with a fork? It hurts! ππ€£π€ππ
Whoβs hiding my spoons π₯
That would be BlanketTime1 , sandydemop1 ππ€£π€ππ π₯π₯π₯
Please ask BlanketTime1 to return them asap.
nope. i need ALL of them ππ
we will have to share spoons.. I can't seem to get enough. Even this weekend with beautiful weather i really want to go for a walk but my legs not so much.
I love the image! It would be great to have some means to let people know.
Ouch
Be careful. spoon deficits can take a long time to recuperate from.
oh no! that looks like it hurts a lot. how did you do that?
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Love it!!!
Coming home from another camping weekend. We were near South Haven, Michigan. Loved the state park we stayed in and exploring the town. Should have taken more rests in the town. I kept lurching to the right trying to tip over. That one is new. Should have taken my cane, slowed down and taken more rests. Took our FAS son with us and he was really good (thank God). Need to be home to shower now. Feel icky but had a good time.
Hello Jesmcd2
I'm new to HealthUnlocked. My disease in the MS family. NMOS and I'm just coping with this disturbing disease. Hope all is well with you.
Hi Maxx57 welcome to our family!! Although I am so sorry about the NMO, I am sooo glad that you changed neuros and found out what was really wrong! That takes a lot of strength! π Give yourself credit!!! Sometimes day by day, is all we can do.. and that's ok! ππ€π π
Reminds me of Chucky, Jesmcd2 , and just in time for Halloween π
Moving is stressful but moving when you have MS is a nightmare
how do you manage the symptoms when your having hot flashes?
When people tell me \"you can't do it anymore, remember you have MS!\"
6 Feb 2009 Thank you very much
