17 years and still searching

[dallas343]

Diagnosed 17 years ago, but did not have any debilitating symptoms until four years ago. Tried Ocrevus a year ago and it made me worse, and just add the spinal tapAnd awaiting the results. Nnone of the doctors are willing to treat me now until the results of the spinal tap come back.What I know to be true is that I have spinal stenosis, herniated disc, pinched nerve, However I have serious issues with balance and I have to use a Rollator in order to walk. Also I am no longer able to drive.

[starlight5]

Sounds like they are trying to reconfirm your ms diagnosis?

I'm pretty sure I've had ms for over 20 years but only diagnosed 6 years ago when symptoms came all at once and kept progressing , spms most likely.

Hope you get answers soon

[Jesmcd2 CommunityAmbassador]

Hi dallas343 I'm really sorry about your problems. 🙁 And where are you from? Didn't you have a spinal tap about 2 months ago? How long does it take there? Hang in there! 🤗💕🌠

[dallas343 in reply to Jesmcd2]

I live in New Jersey. I know the doctors frustrated as well that the results are taking so long. I just found out he received them and so he’ll be talking to me this Tuesday. I will let you know thank you

[lbenmaor]

I will pray things get easier for you.Leslie

[dallas343 in reply to lbenmaor]

Leslie thank you so much. I think prayers are so important and we have to remember to uplift each other Impress.

[BlanketTime1]

waiting for the test results is horrible! hang in there. hopefully you will get some answers (and help) soon.

[palomino27]

You should get evaluated for hand controls in your car. Then you can drive again. I drive from my wheelchair with hand controls