Spasticity ( 😔 )

[Jesmcd2]

I have it, mild... Things do go flying from my hand, usually when I get tired, the worse it gets. My leg will spaz out whenever the blank it wants to!🙁🤣😂 So I deal!

MSAA has a TON of great info on it! Read it! It's right here! ~~>mymsaa.org/ms-information/s... from medication to exercises to help!!!

Do you have spasticity? How do you deal with it? Inquiring minds want to know! 🤗💕

J🌠

positivewithms.com/an-illus... 💕

[falalalala]

I watch with mild fascination when it happens to my fingers.

When it starts to get painful is when I stretch them- same with my calves or feet.

[Jesmcd2 CommunityAmbassador in reply to falalalala]

🙁 owwuucchhhh...☝️🙁🤗💕🌠

[cindyrn68 in reply to falalalala]

The finger spasms are odd. I try to pull my fingers back into a normal position and it just doesn't happen. Grateful they don't hurt. My legs on the other hand...

[falalalala in reply to cindyrn68]

My index finger crosses over the top of my middle finger which is weird because I can't make that happen when I try to do it on my own.

It gets painful until I force it back into position.

[cindyrn68 in reply to falalalala]

I get the same thing! My thumbs also draw across my palm, straight not curled. Weird. Maybe MS is some kind of superpower? Just have to figure out the cool part.

[falalalala in reply to cindyrn68]

Maybe intimidate people for starters?

😅There has to be a use for that ability.

[rjoneslaw]

hope it gets better 4 u

[kdali]

I guess I do 🤷‍♀️ I’ve been stretching during rest breaks.

[hairbrain4]

I have it mostly in my legs and hands. At night my legs just jerk as something scared them. My hands involuntarily let go of things. It used to happen at any given time. Now since I started Ocrevus it only happens between months 5 & 6 before my infusions when the drug is wearing off.

[carolek572 CommunityAmbassador]

Spasticity is always something that I deal with, Jesmcd2

Heat and cold makes it worse. I do take baclofen for it but in very low amounts. I does seem to help.

Keep Smiling

[bxrmom]

I have spasticity, mostly in my left leg. I had a blood clot in that leg in 2007 and after that, the spasms started. At first not too bad, but they became painful after awhile. My neuro had prescribed baclofen for it. Over the years, meds have been adjusted (added, dropped) due to the level of pain from the spams.

[mrsmike9]

My left foot will get a bad cramp at the oddest times! The worst is when I'm driving. Have to pull off and massage it.

[twooldcrows]

i hear ya that is one of the bs with this thing living in us .it has a live of it's own but we just push back and do it anyway....yes sometimes have to really find something else and another way but i am going to win the fight ...hahahhhahahahhh..take care and great info...

[Iona60]

Hi Jes! I've tried every medication out there for spasticity to no avail. Thru the MS rumor mill at the Ocrevus infusion center, a lady told me that her neuro had her on Magnesium for spasticity. Since then I have been taking 500 mg. It seems to be working better for me than any of the meds. Hope that you find something that works for you.

[Jesmcd2 CommunityAmbassador in reply to Iona60]

Iona60 !!! How are you?? 🤗🤗 It's been forever!! Good hint on the magnesium! As long as it's working for you! 🤗💕🌠

[Goldilockssearching in reply to Iona60]

Magnesium topical cream or foam also works. I don’t have them often in my calves but when I do, this calms it in 5 mins!

[Iona60 in reply to Goldilockssearching]

Thanks for the heads up. I didn't realize that magnesium comes in creams.

[kdali in reply to Iona60]

There’s a spray oil also, but it’s not slimy.

[CV97 in reply to kdali]

Ha, I'm reading this thinking I should look into taking magnesium again to see if it helps with the stiffness in my feet. Then you mention the spray oil - duh, I already have this in the cabinet, but quite forgot it was there! Maybe I should start by digging that out!😂

[kdali in reply to CV97]

Right?! I know I have some, but I’m not sure where I put it 🤦‍♀️ I use the lotion sometimes, mostly because it smells like cake 🤣

[Jesmcd2 CommunityAmbassador in reply to kdali]

🎂😂🤣😂🎂🤗💕🌠

[kdali]

I’m going to comment again here, this seems to be a possible Kesimpta issue. Some had it before starting the drug and have increased issues now (baclofen not as effective) and others like me never had it before. And they say it’s the same as Ocrveus 🤷‍♀️ Of course tons of others are just fine on it.

[Jesmcd2 CommunityAmbassador in reply to kdali]

Hopefully you won't have that problem!! 🤗💕🌠

[kdali in reply to Jesmcd2]

I do have it, but it’s entirely new. And weird.

[Jesmcd2 CommunityAmbassador in reply to kdali]

Yeah it is weird when stuff goes flying for no reason!😂🤣 Yikes 🙁 Have you started kisimpta yet? 🤗💕🌠

[kdali in reply to Jesmcd2]

I’m trying to be cool about it instead of mad when it happens 🤣 we still have dishes, for now. Yes, I started at the end of Jan!

[Jesmcd2 CommunityAmbassador in reply to kdali]

Rubber gloves my friend! Rubber gloves! 😂🤣🤗💕🌠

[kdali in reply to Jesmcd2]

🤣🤣🤣🤣

[Sandydemop]

Doing and then resting. Makes me slow down