Here's a question for you! : Some of us... - My MSAA Community

My MSAA Community

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Here's a question for you!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
25 Replies

Some of us have been here for a while ☺️

Some of us are new☺️

Some of us just hang out in the shadows ☺️

What I want to know is... Tell me 1 or 2 things you learned from here! If anything..

J🌠

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Jesmcd2 profile image
Jesmcd2
CommunityAmbassador
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25 Replies
Amore55 profile image
Amore55

I have learned that you do not have to be related to be family,🤗🤗🤗

rjoneslaw profile image
rjoneslaw

I have learned a lot from here

1 I have been able to go to my dr with questions I may not have had it it weren't for this group

2 The group has helped me make an informed and educated decision on weather to go on a certain medication- I told about their experiences with the drug both pros and cons

3 I have been able to learn about how others deal with their situation with MS and what their doctors have told them.

4 I learned about other medications and treatments

5 I've learned how people have altered their life styles to be better cope

6 i've had a good laugh

7 the power of positive people on forum

8 This group is group of gives

9 Is a supportive group in a time when it is asked for and needed

10 The group will hunt u down when you go missing from it (jimeka)

*** I have even given valuable info that I've had knowledge of

****I can write volumes on what I've learned from being here

I will stop there so others can add on

goatgal profile image
goatgal in reply torjoneslaw

Well said! An exhaustive list. How in the world could I add anything? I'll just echo you.

IFwczs profile image
IFwczs in reply torjoneslaw

Beautifully said! I would like to join and add various diet info.

But most importantly, it makes us research and look into issues before posting them.

rrw5620 profile image
rrw5620 in reply torjoneslaw

Well Said

mm1527mm profile image
mm1527mm in reply torjoneslaw

Yes this!! I agree! Also rjoneslaw I recall you were the first to reach out and respond to my many questions when I first joined and was first diagnosed and it really helped me and much appreciated. I was not doing well at the time and was feeling very anxious and depressed and it provided me with some hope and encouragement

rjoneslaw profile image
rjoneslaw in reply tomm1527mm

I'm glad I could give u some relief during a truly stressful time

robster1 profile image
robster1

The obvious things are well...obvious. I guess the overwhelming thing I’ve seen, felt & heard from you as a group is God’s abounding love & grace. I thank Him every single day for offering me a shoulder to lean on in my times of need. To me this group is a part of God’s plan for me. Thank you all for your support no matter what.

falalalala profile image
falalalala

I learned that Lhermitte's sign was the name of that feeling that caused me to go to a doctor.

I finally had a name I could curse.:D

It's also interesting to learn how different people handle MS and the stressors that come with it.

RoyceNewton profile image
RoyceNewton

I learned that I can write, not sure how good, but I can still do it

rjoneslaw profile image
rjoneslaw in reply toRoyceNewton

I would say very well

carolek572 profile image
carolek572CommunityAmbassador

I have learned that I am not alone in this journey with 'ms', Jesmcd2

Kenu profile image
Kenu

Great people here and lots of information and love from the MS family 👍🙏😉🤗🤗 Ken 🐾🐾

kdali profile image
kdali

Permanent makeup is awesome Cooling vests

erash profile image
erash

I learned that I am not alone 🤗

cindyrn68 profile image
cindyrn68

I've learned to value the camraderie of people who know what living with MS is like. I love the sharing, the lifting up of each other, and all of the pets.

kwhompus profile image
kwhompus

our resiliency, across the board, is inspirational

Elizt3 profile image
Elizt3

I’ve learned that I’m not alone, there are a lot of friendly people out there, and ways to manage some of my symptoms. Thank you!

JTZES profile image
JTZES

The most valuable thing I've learned the site is acceptance. This site replaced my Therapist. Since being on the site I have learned so much about MS that I spend much of my time on here trying to spread the knowledge I have to spread help others with their issues.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toJTZES

JTZES Hey!!! We are NOT to take the place of your Therapist!!! No one here is licensed to do that!!! 🤗💕☺️

sashaming1 profile image
sashaming1

We are not alone in our struggles. I can learn from other people's experiences with similar issues.

twooldcrows profile image
twooldcrows

help in coping with all that this disease can affect us ...

hairbrain4 profile image
hairbrain4

I have learned and been reassured that...

1. You are never alone2. There are people that understand what you are going through

3. You can ask any question you need an answer to, even if you think it's a dumb one.

4. It's good to laugh even when you don't feel like it. Laughter really is the best medicine.

5. There's more to life than just having MS.

eharoot profile image
eharoot

almost daily I learn some little fact in the conversations that go on. its just such a comfortable space to be in and I look forward to it

mrsmike9 profile image
mrsmike9

I agree with all stated above and I will add one. I am not afraid anymore should I end up in a wheelchair. People here have shown me that life goes on and it's not as scary as I thought. Prior to joining this group the only person I knew with MS uses a scooter. She cannot walk at all. It's nice to know there are many varieties of disability and people may continue down the entire path or not....and it doesn't devalue you.

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