PPMS and "Shocks": Does anyone else with... - My MSAA Community

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PPMS and "Shocks"

10 Replies

Does anyone else with MS get what feels like a "jolt" or "shock" on their limbs? I get them more and more, always in my legs. It feels as if a hot ash flicked on you for a second.

Thanks and Happy New Year to All

10 Replies
kdali profile image
kdali

Mine feels more like I’m being electrocuted from the inside, but I have RRMS.

in reply to kdali

Do you think it matters what type we have? I know for certain it's an MS thing however I do not many who also have same symptom.

kdali profile image
kdali in reply to

No, I only think it matters where the damage is...but I wanted to clarify in case you only wanted PPMS responses. It happens more often when I’m tired, or in the evening, and I got shocked a lot during the end my first pregnancy 🤷‍♀️ The right foot gets the worst of it.

cheilke profile image
cheilke

Yes. It always mystifies anyone I'm with as to what causes me to yelp for no apparent reason.

kwhompus profile image
kwhompus

At night when I lay down I'll get shocks that will make one leg or the other jerk hard and quick, Just once and its done, than its back to the normal tremors until the baclofen kicks in. I've often wondered if coffee is a contributing factor, but I can't find a pattern. I too have PPMS and can feel your frustration.

falalalala profile image
falalalala

I used to & out of all the things MS does, that was the worst for me, I'd rather fall down than deal with that.

I didn't know a name for it until I joined here and saw someone's post.

webmd.com/multiple-sclerosi...

kdali profile image
kdali in reply to falalalala

I don’t count this is Lhermittes. This shock for me is random, unprovoked, a million times more painful, and only below the knee. Lhermittes you can make happen by bending your neck to look down. It will come to visit me sometimes too. I’m a party 🤷‍♀️

Dolf profile image
Dolf

I too have ppms, and feel exactly the same. Shocks during day and night. Happy new year!

Cutefreckles72 profile image
Cutefreckles72

I have PPMS also. It effects both of my legs but my right leg gives me trouble all the time. I don't experience the shocks just stiffness and tightness in my calf and sometimes in my thigh. Its amazing how MS works.

Tazmanian profile image
Tazmanian

I get an electric shock in my left hand for no reason I dont think it's l'hermetts it only lasts a second

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