I had a telemedicine appointment today
He told me I don’t have MS
Guess I have to exit here
Well...: I had a telemedicine appointment... - My MSAA Community
Well...
28 Replies
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No, I think and hope not.
Honey, you’re one of us always. I’m surprised about this news. Any alternate diagnosis?
Please don't leave! What made your doctor conclude that?
You don’t have to have MS to be a part of this community...just care about those who do...like we do about you! What is the next step in trying to figure out what is going on? I hope you are able to get some answers.
What a lovely response! Well said.
What else did he say?!
You can’t leave, you are part of our family. What dx did the doc give you? 🤗🍫
Oh please stick around!
What did dr say the problem is? Don’t leave!
Why leave? You're part of the family (and his diagnosis is based on what exactly?)
don't go 
You are a part of the family, you can't leave. I think you need a new Dr.
I am glad they do not think you have MS. It looks like no one wants you to leave the group either. I hope to see (read) you around here. 🤗
Don’t leave! What does he think is going on? What are the next steps?
I have cerebellum ataxia, cause unknown. I got my diagnosis May, 2019. I have been dealing with symptoms for years! My symptoms became intolerable. So before the rapid decline I was misdiagnosed with a variety of reasons. Bottom line was I was correct. I wasn’t a klutz. (double digit broken bones) I was ready to pounce on any doctor. I was frustrated and exhausted. Fatigue is a symptom of this disease. My husband actually got fed up with the bullshit. He made appointments with top neurologists out of Northwestern. I met Dr. Garg. She looked at an MRI from 10 years ago and showed me the advanced atrophy in my brain. I got my diagnosis. I’m completely disabled as my symptoms have become worse. Their is no cure or treatment for me. I decided to get my pain somewhat under control. I had to argue and fight with the medical experts until I went to Northwestern. I’ve been to other neurologists. The best of the best and I still wanted to punch her in the face. Her main concern was the cause. Mine was to make sure it wasn’t genetic. In the end I decided on how I would move forward with my life. Not much has changed. Yes I miss working. Yes I miss things like a car ride to my brothers summer house, I cannot tolerate the drive, pain....bottom line is that you cannot wait for them to make life decisions. I don’t know your symptoms but my demise was all the falling. Yes I had a cane. The big brain out of Rush University tried lumping me into a study from the Netherlands. Yea, I’m a Viking. NOT! She tried prescribing medication for ALS. I believe the cost was over $800.00 per pill with insurance. I laughed my ass off! I never returned. The doctors in the Netherlands couldn’t fit me into their study because it’s not genetic. I gave permission for her to keep looking for the cause but she will fail. I just want you to be very aware they’re practicing medicine. That’s why I advocate for myself and decisions are made by me and my husband. Don’t give up on yourself. Have a great weekend!
That’s great news!
As you can see. Mixed reaction. As many of us have been through the mill for both MS & other ailments. Drs are human,, have limitations.
You are a smart lady need a diagnosis. Hang in here til you get one. Keep us apprised. My theory you know your body better than someone who sees you for 15 mins. Sometimes long journey, but hitting tight dr is a blessing.
Prayers and peace
carolek572CommunityAmbassador
Please do not leave the forum, Hidden because I have grown quite fond of your posts and responses, and I am certain that many others in this forum, have as well. However, the decision is up to you. Just wanted to let you know that you will be missed. Keep Smiling 
That sounds a bit...abrupt. There had better be an explanation for this and a diagnosis to go along with it. I am hopeful for you that this statement is true, but at the same time apprehensive about what else you were told...what it could be. Please let us know so we know how to direct our prayers!
Dr. hopefully looked at a MRI or lumbar puncture to help make the conclusion.
Good morning All—-
Thank you for the wonderful and supportive messages.
The Neurologist didn’t wanna give an explanation and wasn’t even nice or give me any options.
I think I know my body better than he does...
And his lack of not listening to me, makes me know....
I need to seek a different Neurologist.
Something is wrong....maybe it just is the fusion surgery and spinal cord damage...??
I am better than Pre-surgery...but very far off than where I was, just one year ago.
When I was able to work full time, shovel snow, walk unassisted, etc.
I know it can always be worse....
Blessings and prayers 🙏❤️ to all.
And Happy Halloween 🎃👻
Doubled51 in reply to
Hidden . Don’t leave us girl. You are part of us now. You’re the only one I get to talk with about these fusions. I could walk when I walked in to the hospital for surgery and fusion and haven’t walked alone since so I understand your frustration. So hang in there for me.
Best of luck my friend.
Donnie
wow i don't understand about them changing everything is it because maybe they screwed you up by their surgery ...i sure would be getting a second and third doctors looking at everything and then maybe a lawyer to go over all of this ...you take care and yes you know your body better than anyone ...be safe ....love and happiness...
We told you ,it doesn't matter if u have MS or not!!!😊 .
Is there an alternative diagnosis? That's 👍 news!
🙏❤Lisa💕
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