Your Not!: How many of you have felt like... - My MSAA Community

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Your Not!

Jesmcd2
Jesmcd2CommunityAmbassador
β€’40 Replies

How many of you have felt like a burden?? Why?

You are not! We live with one! We didn't ask for it. It just is. And we come together here to share it!

You are never a burden! Always remember that!

πŸ€—πŸ’•πŸ‘»

40 Replies
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greaterexp
greaterexpCommunityAmbassador

I try not to act like one, but there are times I feel a bit like a burden when I've disappointed someone due to limitations on my part. There is always something to adjust to, isn't there?

Jesmcd2
Jesmcd2CommunityAmbassador in reply to greaterexp

There is always something to adjust to in life in general, MS just makes it more special..

Don't feel like you disappointed anyone greaterexp I'm sure they all understand!! And you are never a burden!!πŸ€—πŸ’•πŸ‘»

greaterexp
greaterexpCommunityAmbassador in reply to Jesmcd2

It’s that I know I disappoint my husband sometimes with my limitations. He loves to entertain, but it can be such a big burden for me, even when I’d like to, too.

carolek572
carolek572CommunityAmbassador

Good Post, Jesmcd2 I always feel like a burden and I get frustrated when others go out of their way to include me in their plans. But I should be grateful that they go out of their way to have me in their activities. :-D

Jesmcd2
Jesmcd2CommunityAmbassador in reply to carolek572

Tell them that carolek572 ! Are they doing something to make you feel that way? πŸ€”πŸ€—πŸ’•πŸ‘»

carolek572
carolek572CommunityAmbassador in reply to Jesmcd2

No, I am always grateful that they go out of their way to include me in their plans, always. I am just frustrated that I cannot do more to help, that's all. :-D

carolek572

I am having a hard time adjusting to my limitations and asking for help....

I spend a lot of time in prayerπŸ™

β€οΈπŸ‘πŸ€—

Jesmcd2
Jesmcd2CommunityAmbassador in reply to Morllyn

πŸ€—πŸ’•πŸ‘»

love it and you can always help us feel good about ourselves just like some others on here also help also....thank you ....

Jesmcd2
Jesmcd2CommunityAmbassador in reply to twooldcrows

We all work together to help each other!! πŸ€—πŸ’•πŸ‘»

You might say, because of Covid19, I feel less of a burden, because I don’t need lifts to appointments, a lot appointments are now done by telephone or video call. I get my groceries delivered so the pressure is off me needing people to do things for me. Good post. πŸ‘

Jesmcd2
Jesmcd2CommunityAmbassador in reply to jimeka

You my dear have never ever been a burden!! πŸ€—πŸ’•πŸ‘»πŸ«πŸ«πŸ«πŸ«πŸ«

My perceived β€˜strength’ has pushed away more than one person in my life. Maybe this illness is forcing me to finally ask for help to forage the type relationships I’ve always wanted to have but feared having.

Someone recently said to me that if we don’t allow those around us to help, we are not allowing them to love us the way they need to. So we are helping others by allowing them to help us.

I leaned on my mom once after hearing that and she thanked me for allowing her to be there for me. Just the other day my (then-6 year old) daughter parroted to me a similar need for us to lean on each other to lean into love.

If I’m able to learn this lesson - and I trying - then we all have a chance!

Amore55
Amore55 in reply to Oceandream

What a great message, thank you for sharing!

Jesmcd2
Jesmcd2CommunityAmbassador in reply to Oceandream

Agree with Amore55 great message! And very smart 7? Yr old? πŸ€—πŸ’•πŸ‘»

Oceandream
Oceandream in reply to Jesmcd2

She is amazing! Just turned 7.

Jesmcd2
Jesmcd2CommunityAmbassador in reply to Oceandream

And very intuitive! Your going to have to watch out for that one! πŸ€—πŸ€—πŸ’•πŸ‘»

Your daughter is a smart cookie!

Beautiful post....

Thank you, I Needed that message today

You’re so welcome!

I try so hard to not be a burden, to keep up & not complain, but it's getting more difficult to "put on a happy face". My husband still wants to plan vacations & outings that I know I can't handle. Been married 44 years...I don't want to disappoint him. Covid had helped me due to travel restrictions & such. Isn't that a sad statement. 😞

Amore55
Amore55 in reply to 2littletime

No, it is very honest!

Jesmcd2
Jesmcd2CommunityAmbassador in reply to 2littletime

Not sad 2littletime it's the truth and understandable. πŸ€— But your not a burden!! Even if you don't give it your all! Your going to burn out!

Suggest a more suitable MS approved Vaca! They have them out there! πŸ€—πŸ’•πŸ‘»

2littletime
2littletime in reply to Jesmcd2

Thank you πŸ’–

Thanks for sharing. Ms is a horrible burden but i try to think often it is not a death sentence and things could always be worse. Glad for this group

Jesmcd2
Jesmcd2CommunityAmbassador in reply to mm1527mm

I don't think of it as a death sentence! No one should!! Talks like that should be had between you and your Dr! πŸ€—πŸ’•πŸ‘»

mm1527mm
mm1527mm in reply to Jesmcd2

Yes i agree. When i was first diagnosed i was very upset and devastated and my doctor told me it is not a death sentence only a life sentence. Made me realize things could always be worse. With time i have become more positive

Jesmcd2
Jesmcd2CommunityAmbassador in reply to mm1527mm

I think we have all been there mm1527mm I know I felt the same way!πŸ€—πŸ’•πŸ‘»

I am a burden to myself. I have a long list of why’s and having babies makes it so much worse. Before diagnosis it was worse because I didn’t know why I couldn’t soldier on, or why I was desperate to cancel plans.

Jesmcd2
Jesmcd2CommunityAmbassador in reply to kdali

You need to stop that kdali !! Feeling like that inside, can show outside πŸ˜” Your not a burden!! Not even to yourself! It's ok to be not ok!πŸ€—πŸ’•πŸ‘»

kdali
kdali in reply to Jesmcd2

πŸ™πŸ™πŸ™

Thanks. I needed that today. I have nobody at home I can talk about this to. Because of that I really feel like a burden...

Jesmcd2
Jesmcd2CommunityAmbassador in reply to mrsmike9buffering

You are not a burden!! Your family loves you!! And I assure you, appreciates everything you do! I know we all do here!πŸ€—πŸ’•πŸ‘»

❀

It's ironic to see this post after what I'm experiencing. I'm pretty progressed to the point that I can't be left alone and have weak upper body strength and confined to a chair. My cognitive function has declined to the point that I can't manage my own medications anymore and I only have one person to help me and that would be my husband. No one on my side of the family left and we have no children. His father died last week and we had to travel for the service and travelling is really difficult since going to the bathroom and always praying that there will be a family stall so he can help me makes routine travel just not worth it but we had to do this. Well now I do feel like a burden because his family is treating him like he has the easy life and should have visited more often. It might just be the grief and I'm reading too much into it but when he said that he needed to return there to get his childhood things he mentioned that he might leave me home by myself. I think he resents me because he is so angry with me now and just looks at me differently. While we were there, his brother in law, a pastor said that his sister had bipolar disorder and his childhood was difficult and he thought his parents should have just have had her instituitionalized. This is coming from a pastor! Then they want to throw my mother in law in a home. Is this what we do with people that are no use to other people these days? If so, what is to become of me since I have no one else except my husband who doesn't appear to want me. I'm ready to move but I can't even leave the house on my own to get medicine if I need it. I can't fit my chair in an Uber. It all feels so hopeless. I'm sorry I never complained in this group before but I feel so lousy.

Jesmcd2
Jesmcd2CommunityAmbassador in reply to cshells72000

Hi cshells72000 I'm so sorry you're going through this! And I really wish I had the answers for you. But I would give your husband time for grieving? IDK?

As far as putting your mil in a home? IDK about that either.. I told my mom she gets cardboard boxes, and if she wants insulation to talk to my brother! 😁🀣

Hang in there! Let us know how it goes ok? πŸ€—πŸ’•πŸ‘»

I love this, thanks for sharing!😁Great reminder

Jesmcd2
Jesmcd2CommunityAmbassador in reply to DIsneyQueen

Very Welcome!πŸ€—πŸ’•πŸ‘»

Love this!

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