Zeposia

[NatureAndNurture]

Hi,

Has anyone tried Zeposia? Is it working for you? Side effects? Any information would be appreciated so much! It’s a new medication so I’m a little worried about taking it.

[Jesmcd2 CommunityAmbassador]

Hi there NatureAndNurture ☺️ I am not on that personally. I did find this with some info on it tho. mymsaa.org/ms-information/t... it's about halfway down the page. I hope it helps! 🤗💕👻

[greaterexp]

Since it's relatively new, we probably don't have lots of members taking it, but you might look at previous posts by using the "Search HealthUnlocked" button at the top right of the page to see if there have been others using it.

[mrsmike9]

There are many new meds out there! I even saw one talked about on the evening news, which is really something!

[NatureAndNurture in reply to mrsmike9]

I’ve had a hard time finding something that works where the treatment isn’t worse than the disease!

[mrsmike9 in reply to NatureAndNurture]

Don't just read the side effects. Those happen in very few people. You don't know unless you try them.

[NatureAndNurture]

True - I’ve tried several

[Lilith08]

Hmm...was hoping to find info, too. I'll see my neuro in a couple days to talk about possibly trying something new, but maybe this is too new! NatureAndNurture did you find out anything more after this post?

[NatureAndNurture in reply to Lilith08]

No, but when I read it can make MS significantly worse if you stop taking it I decided against it!

[Lilith08 in reply to NatureAndNurture]

OHHHH! I don't like the sound of that either! So does that mean, for example, that if you take it for a while then stop the treatment, you can have a relapse? Or something different?

[NatureAndNurture in reply to Lilith08]

It just says it can significantly make MS worse when you stop taking it.