Damn

Damn bladder...

My sleep is so screwed up..

Numbness, is awful

I’m trying to be tough

I know, there are lots of you, probably worse..

I sound like a whiner@ 4:30 am?

Just tell me to be quiet...

[Kenu]

My normal is 2-3 hours then need a drink and potty. Couple more hours, drink and potty. Luckily I can go back to sleep, but it’s never a long lasting sleep 😴. This is my normal the last five years. No sleep aids help, so I have learned to deal with it. Have a wonderful weekend 👍🙏😉🤗 Ken 🐾 paw

[Hidden in reply to Kenu]

Ken,

I am in the same damn boat..

Same boat

[Amore55 in reply to Hidden]

Keep rowing, my friend! That is all we can do! Love you, Kelly

[Goldilockssearching in reply to Kenu]

Sounds about right-only I have trouble falling back asleep each time I get up.

[2littletime]

😢. If it was 4:30 pm you could "wine" rather than "whine". Hehehe go ahead & whine we will listen...🌹

[jimeka]

If you were quiet, I would not be able to hear you, go ahead and shout, we are all listening 👂

[rjoneslaw]

I'm unable 2 do that

next request

[CalfeeChick CommunityAmbassador]

And 2:30AM!😄😄

[twooldcrows]

ha we all are in this together and don't worry about someone wanting to tell you that for i don't anyone would want to say that for we are in the same bs with this thing i call the monster MS ...it like to remind us it is still here so we just have to find a way to work around it don't let it win you are stronger that it is and you have lots of stuff you want to do ...just tell it want you want and do what is necessary ...stay calm and do what you can do over do this ....love and much happiness with loads of laughs ...i am smiling for you and here is a BIG HUG...

[Hidden in reply to twooldcrows]

Aww thanks so much for your words

BIG HUG BACK

[twooldcrows in reply to Hidden]

your very welcome and hope all of us cheering you on makes you realize your not the only one with this issue ...have a wonderful day and of course many more and let the nights do there own thing and you will be fine...love and happiness ....

[Hidden in reply to twooldcrows]

Smile 😀

Football 🏈 here

Said I would not watch, because of the political BS

But going to watch and hit the mute button if I don’t like what they say

Just love the game

[greaterexp]

Venting is different from whining. We understand.

[Ak333]

Yep.. almost 1am and I’m up. First of my 3 times I usually wake up due to my bladder. I can’t even remember what it feels like sleeping through the night! Venting helps us all to not feel alone in our life with MS 😊

[goatgal]

We're all in this boat together. Go ahead and whine, because if not here, where? If you keep it bottled up, that's not at all good for you.

[Ali_B62]

Definitely don't bottle it up. This disease is very frustrating.🥰

[kdali]

I wish I could get up at 430, after a solid nights sleep 😬

[pamgarner in reply to kdali]

what is that?

[kdali in reply to pamgarner]

🤣🤣🤣

[DanAmme]

Be quiet😔

[Mermaidia11]

Ah chick so annoying Hidden

Been there done that...

What worked for me was getting Desmopressin nasal spray from the doctors, having a big drink first thing; coupled with not drinking a single ounce of fluid for two hours before bed

(why do they not tell you this?!)

Good luck chick

Hugs

[Nana5B]

Have you talked to a urologist about bladdder Botox? Let me tell you, it’s a game changer!

[Hidden in reply to Nana5B]

Just whole body numbness, not shure if that would help...

But thanks for the suggestion

[mrsmike9]

I am so happy when I only have to get up twice at night. It's so weird because generally my walking is not bad but in the night I stagger and have to hang onto furniture (while I'm clenching). I don't understand why that started.

[YLGram]

I do hip bridges for my bladder.

Started with 10 a day for a 2 sec count slowly increased the do 2 sets of 20 reps EVERY morning beforeI leave the bedroom starting each set with a 5 court hold then doing 19 more at a 2 count hold. Repeat. I have reduced my "piddle pads" (4 drip at night, 3 drip during the day) from a new one each night and a new one almost every day to a total of 4 week. Now I've been doing this for well ing 5 months, so it is not a quick fix but you CAN do it!

Sleep is 5 mg Zambian ½ hour before bed . I know its effect on me, tolerate it well, get up twice a night to pee (i'm a tummy sleeper) and get 8 hours. Hang in there, listen to your body. You can use this.

[Disneycde]

Hugs. I get it. We all need to vent about it😊