My little problem : Just talked to my... - My MSAA Community

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My little problem

Turtlepie profile image
26 Replies

Just talked to my neurologist said to stop the steroids and flush my them out of my system and take it easy for the next few days and to call them if my vision problem returns. I feel like yuck still and I am so fatigued. It won't be a problem taking it easy. Thank you all for being here for me

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Turtlepie profile image
Turtlepie
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26 Replies
greaterexp profile image
greaterexp

I'm sorry about the fatigue, but I'm so glad you got instructions from your doctor. Please be careful and keep us posted on how you're doing.

Turtlepie profile image
Turtlepie in reply to greaterexp

Thank you. I will keep everyone updated

RoyceNewton profile image
RoyceNewton

good luck with everything stay safe

Turtlepie profile image
Turtlepie in reply to RoyceNewton

Thank you. I will do my best. You stay safe also

jimeka profile image
jimeka

So pleased that you got a professional opinion now do as you are told and rest. Thank you for letting us know, take care, hugs Jimeka 🤗

Turtlepie profile image
Turtlepie in reply to jimeka

Yes mom I will. Hugs back at you. Thanks again for being here last night

jimeka profile image
jimeka in reply to Turtlepie

Any time 🤗

Violonchelo profile image
Violonchelo

I am sorry, I can’t help you. And I feel bad when a person like you with MS is worst, and my future I don’t know. At the moment all is good in my stable live, but I don’t know the future. My first moments with MS were bad, and nobody can feel what We feel when we feel bad because of MS. It is so particular that nobody understand the pain. Could you speak with other neurologist or other doctor, or with 2 ó 3 neurigists? Maybe an opinion of several doctors could be better .

I hope that you maybe with paracetamol will be better, or calm, or change the tratament , Refif is the mine . But maybe it is no good for you. Sincerely I hope a solution soon for you, dream!!!!!

Turtlepie profile image
Turtlepie in reply to Violonchelo

Thank you I am have good doctors just limited on how I can get them they don't have after hours calling. You take care. I will just be drinking lots of water, watching TV and crocheting

agapepilgrim profile image
agapepilgrim

Give your hands a rest also😀

Turtlepie profile image
Turtlepie in reply to agapepilgrim

I will but crocheting is the only thing that keeps me still and relaxes me

agapepilgrim profile image
agapepilgrim in reply to Turtlepie

I hear that! My hands feel empty. I used to always be rubbing Mandis head. If my hand cooperates I play HexFrvr

carolek572 profile image
carolek572CommunityAmbassador

Be Well, and I am happy to see that you have it under control, Turtlepie :-D

Turtlepie profile image
Turtlepie in reply to carolek572

I am doing my best thank you. You take care of yourself also

Oh no—

Sounds like you have it under control, good.

Sending prayers and a hug your way. 🙏🤗

Turtlepie profile image
Turtlepie in reply to

Thank you. Hugs and prayers for you

Steroids always meant I couldn’t sleep so hopefully you’ll get some sleep now you’re comings off them . Be patient and give it time to leave you

Turtlepie profile image
Turtlepie in reply to

Thank you. I am trying to be patient

Neworleanslady profile image
Neworleanslady

How r u gonna flush it?

Turtlepie profile image
Turtlepie in reply to Neworleanslady

Lots of fluids

Neworleanslady profile image
Neworleanslady

I ask bc i am on my last day of 11 days of taking cholestyramine to flush out aubagio (which did awful for me. ) It feels like this stuff must be like what they give you before you get a colonoscopy! Total colon cleanse! But i can barely leave home bc i have to go so much!

I hope you feel better! I thought steroids were supposed to make MSers feel really good

Turtlepie profile image
Turtlepie in reply to Neworleanslady

They didn't use to make me feel like this.

in reply to Neworleanslady

They do believe me . Got me up off the floor many a time but they do make sleep difficult

Neworleanslady profile image
Neworleanslady in reply to

I am so tired these days I can’t imagine difficult sleeping! But I’m sure there’s a downside because nothing comes easy for us MSers

Turtlepie profile image
Turtlepie in reply to Neworleanslady

I know what you mean. We are a special breed

rjoneslaw profile image
rjoneslaw

I went though the med wash and it was a challenge with fatigue but once it was out I was good. I started a new med the next day.

I went from tecfidera to Ocrevus

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