Hello there!

[Wheels420]

Hello, my name is Elizabeth. I have not been diagnosed with anything yet. I have a few big issues and we have started digging but this crisis has shut everything down and I’m going bonkers with no answers and nothing happening...

[Peruzzot]

Can you call your doctors to see if they have any results from tests you've done already? Some information might be better than nothing.

[Wheels420 in reply to Peruzzot]

I haven’t even been able to get anyone to answer the phone. You’d think I would be able email them buuuut I cand find an address anywhere.

[Wheels420 in reply to Wheels420]

And I have a disk with the images of my brain but I don’t know what it is supposed to look like, of course. 😅

[greaterexp in reply to Wheels420]

Was there no preliminary report with the disk? Lately, my disks have the images, but also a limited report. The bad thing is interpreting that report without your doctor's help. Something may be technically abnormal, but actually mean very little.

[Wheels420 in reply to greaterexp]

I could look again for that. I’m really trying not to let myself get too far down the rabbit hole, y’know? I’ve been known to obsess.

[Wheels420]

Luckily, I’m not having much pain right now but waiting in limbo for answers IS pretty painful.

[jimeka]

Cannot you not google your doctors office and there is usually an email address there. I hope you get sorted soon, keep us posted. 😊

[Iona60]

If you really want to be sneaky, you can call the MRI place and ask for a copy of the radiologist's report to be emailed to you. They are difficult to understand and won't contain a diagnosis, but may offer some clues.

[IFwczs]

What are your symptoms?

[Wheels420 in reply to IFwczs]

Ataxia, I haven’t walked since ‘07 when I, apparently, tore my ACL. So there is also some atrophy but I’m in physical therapy and some things are improving, not all. History-wise, I’ve had optic neuritis twice, many years apart, first time, I was 12. Also lots of behavioral episodes, bouts of severe depression and persistent suicidal behavior. I suppose years of intermittent alcoholism is relevant. No one seems to know for sure. I recently experienced about 4 months of debilitating wrist pain. Vertigo.

[Wheels420 in reply to Wheels420]

And I’m sober from alcohol now for 8 months.

[StacyHayward in reply to Wheels420]

Congrats on being sober. That’s hard work!

[Wheels420 in reply to StacyHayward]

Thank you!

[greaterexp in reply to Wheels420]

Wow!! That’s awesome!

[IFwczs in reply to Wheels420]

I am not a doctor, but it really can be anything, not necessarily MS. I would take a deep breath and wait for the MRI results. All of us here have spent many years trying to get our diagnosis and have been misdiagnosed a few times. Don't despair!

When this pandemic ends, you should get a second, a third etc. opinions.

Congratulations on your 8-month anniversary!

[Wheels420 in reply to IFwczs]

Thanks so much! I just need to hear that. 💚

[IFwczs in reply to Wheels420]

Please let us know the final diagnosis when you get it, even if it's not MS. In the meantime, stay safe and only go to the hospital for an emergency now. This can wait.

[greaterexp]

We feel for you. Many of us have had long waits for answers and know how frustrating the waiting and wondering can be.

I hope you will share with us when you get some answers or about what testing you're doing along the way. Hang in there.

[Wheels420 in reply to greaterexp]

Thank you so much! It’s nice to be able to talk about this at all. I’m hesitant to mention it much because it may be something else and then it’s like I was crying wolf. But I’m still here with all these symptoms... Again, thank you😅

[Wheels420]

Hey folks. 😊 I did finally manage to reach the neurologist and he said the radiologists report said unremarkable. So... Uh...