Hello there!: Hi. My name is Bob. I was... - My MSAA Community

My MSAA Community

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Hello there!

Redhawk profile image
31 Replies

Hi. My name is Bob. I was diagnosed in 2003. I am getting so much from all of your post. I really am interested in exercise and diet. What works and what doesn’t. I believe we are here to help and support each other. Looking forward to getting to know you all.

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Redhawk profile image
Redhawk
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31 Replies
greaterexp profile image
greaterexp

Welcome home, Bob! I’m glad you found us and have already found information and support. No one understands better what it’s like to deal with MS than those of us with MS.

You may see posts directly related to diet and exercise (or any subject) by using the “Search My MSAA Community” box in the upper right hand corner of the page.

Redhawk profile image
Redhawk in reply to greaterexp

Thanks for letting me know. I will check it out.

rjoneslaw profile image
rjoneslaw

For me I have been doing tia chi and the exercises from a Facebook group called the MS gym. Both are helpful for me and the MSAA recommended both.

Redhawk profile image
Redhawk in reply to rjoneslaw

Tai chi is something I want to look into. I love yoga and have had benefits from it. Thanks

SueAB profile image
SueAB

Welcome, Bob! You are absolutely right! You will definitely find help and support here!

Redhawk profile image
Redhawk in reply to SueAB

Thanks Sue.

RoseySawyer profile image
RoseySawyer

Hi and Welcome Bob! 😊❤🌷

CraigS profile image
CraigS

Hi Bob,

You found the right place.

RoyceNewton profile image
RoyceNewton

Bob, work on your core mate.

Jazzihorsecat profile image
Jazzihorsecat

Bob, a very warm welcome to the greatest MSer Warrior Family on the web, we're so glad you joined the family & as Greaterexperience said, Welcome Home!👍 I'd advise no Gluten or wheat or any Dairy (Cow), I eat only fruits, veggies & All Natural, raised on Grass only Lamb, Buffalo, & Cage free eggs, & Free Range, organic Chix & Turkey, if I want my meat protein.. Now, none of us are Doc's here, but many of us have come out of the medical field.😀 Cannot wait to get to know you better too, & Remember Always, we're here for you, cuz now you're family too!👍👋 Blessings🙏---Jazzy🌹💜

Redhawk profile image
Redhawk in reply to Jazzihorsecat

Thanks for the kind words of welcome

Peruzzot profile image
Peruzzot

Welcome to the group. You've come to the right place for advice, a place to vent, understanding, and find some great humor.

Memc profile image
Memc

A good blog for MS and exercise is Dave Bexfields ActiveMSers.com, and I think the Wahl Protocol has something to add see Terry Wahls Ted talk.

Redhawk profile image
Redhawk in reply to Memc

I will check it out, thanks

Redspot profile image
Redspot in reply to Memc

Thx...yes I have looked st Terry Walls

A little too extreme for me.

How goes it for you?

Memc profile image
Memc in reply to Redspot

It is extreme however I tried to lose weight all my life. I did Dr Wahls protocol because of hopes it would help my MS. It maybe helped with fatigue. The weightloss was incidental over a year.

Mary

Juliew19673 profile image
Juliew19673

Hi Bob! I think you will love it here - so many smart and kind people reside here. What was your DX (MS type) and what DMT have you found that works for you? I was DXED with PPMS and started on Ocrevus this past June, which has worked wonderfully - for me. For diet - Fruits, veggies and I avoid bread/carbs as much as I can. But I do still eat all dairy (must have all things cow). Look forward to getting to know and help you!

Redhawk profile image
Redhawk in reply to Juliew19673

Thanks for your kind welcome. I have a progressive MS. Drop foot on my right side. I am on Plegrity and gabapentin. It been 15 years and I do PT, yoga,and diet. I have been staying away from glutens as much as I can. Trying a more organic and fresh local grown foods as the seasons allow. It’s great hearing what others are doing.

bxrmom profile image
bxrmom

Welcome to the group Redhawk Glad you are here, sorry for the reason. As you can already see this is a wonderful group of caring people! Look forward to getting to know you.

Jessie

lbenmaor profile image
lbenmaor

Red,

I'm so glad you've joined our team! This is a great place to ask ?s and get information.

Regards,

Leslie

lbenmaor profile image
lbenmaor

Bob,

Welcome to our wonderful team! This is a great forum to ask questions and learn from others.

Regards,

Leslie

DIsneyQueen profile image
DIsneyQueen

We are in Michigan in spring and summer and I do PT exercises and peddling on a floor peddler. (Boring) the rest of the year we spend at our co do in Fla. I walk and exercise in the pool 45 every day and love it. ( not boring) I was diagnosed 7 years ago and had been very active before that. I have primary progressive MS and can not walk without my walker, but in the water I can walk and move without any problems

Redhawk profile image
Redhawk in reply to DIsneyQueen

Thanks that helps

BigMar7 profile image
BigMar7

Welcome Redhawks! I train with a trainer once a week and try to eat healthy but it doesn’t always work.

Redhawk profile image
Redhawk in reply to BigMar7

I hear you.

Mymarcus2010 profile image
Mymarcus2010

Hi Bob! Welcome to this community of Fighters! Im on Tysabri...just started 2 months ago. Im in my 40's so trying everything I can to stay healthy for the long haul! I eat for my blood type"O" ..very similar to Wahls diet actually. Grass fed beef, organic everything, and no dairy! Gave up coffee...this was not easy but had too. My nervous system couldn't take the caffeine anymore. The diet keeps the inflammation down in my body. I take D3(2,00units), Colastrum, magnesium. Also Milk thistle, for my liver and whatever else that can help. (CBD oil)

Im on a nerve pain med that I just started taking...this past year was awful, never thought MS could do this to me! So I Fight! Meditation is good & prayer...I have a wonderful support of family and friends who are willing to take me to infusion appt and care for me. Surround yourself with people who truly care, love you and are willing to understand and go the distance! Know that this community will be here for you!

Peace & smiles :)

Redhawk profile image
Redhawk in reply to Mymarcus2010

I hope you make out good on your treatment. I have been looking at CBd too. I wonder if there are others here who will share their experiences.

kycmary profile image
kycmary

Hi Bob welcome glad to meet you my name is Mary

Redhawk profile image
Redhawk in reply to kycmary

Thanks Mary

Redspot profile image
Redspot

Go Bob go!

Redspot profile image
Redspot in reply to Redspot

I didn’t know there was an MS community

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