why are you people more knowledgeable and more reassuring as well better able to verbalize or explain in chief ...than doctors /ms team?

I want to officially thank all of you ms warriors for your much needed help. Especially, that u were kind enough to explicit ally lol! Thanks a million. like we say in french merci et salut

[RoyceNewton]

because we all have had this passenger for a while

[Hidden in reply to RoyceNewton]

passenger? The trip from hell !

where is barack obama when we desperately need him?

[RoyceNewton in reply to Hidden]

yes ms is a ride for sure, bat out of hell by Meat Loaf

3 little birds by Bob Marley

[Jesmcd2 CommunityAmbassador]

Hi Hidden nice to meet you! 🤗💕🌠

[Hidden in reply to Jesmcd2]

bonjour to you too. As an ambassador can I directly ask questions to ur tem couselors? doctors?

[Jesmcd2 CommunityAmbassador in reply to Hidden]

You can ask anyone here questions Hidden as you found out, many of us have learned from each other.

No one here is a Dr! Or can take the place of your neurologist and medical team!

But ask away, and we all can help in anyway we can!🤗💕🌠

[kdali]

My experience with MS specialists is that they know end stage and worst case scenarios very well, but outside those boxes, your care is only as good as their experience and interpretation of what you are telling them. I have known very few of those and I’m sure there are some out there who know this disease on a personal level and are exceptional resources. Most will have no idea how to tell you to live with your disease and/or the ever changing range of possible problems it brings. The diagnosis and medication is a very small part of what it means to have MS.

I hope you find what you need here!

[Hidden in reply to kdali]

You are so wise and you put the whole think with such eloquence and elegance. Thanks for your thoughts

[rjoneslaw in reply to kdali]

i agree 100% we have to speak up and advocate for ourselves

[goatgal in reply to rjoneslaw]

And even when we advocate for ourselves, it can be difficult to find someone who listens.

[Hidden in reply to rjoneslaw]

You 're so so right but it's still so hard. We have the disease and we are treated like 2nd class. You always have to battle and it's not fair nor pleasant. they like compassion but then again they are doing/saving their job just like I did when I was working. You want to be respectful but then again u r always fighting them.

[goatgal in reply to kdali]

Absolutely right on. Knowing this disease from a clinician'sl perspective is very different from understanding it from a patient's.

[twooldcrows]

another one well said just ask us ...ahhahahhhha.....when you experience it it is easier to explain the docts don't have it so they just say whats in the books...ahhahahah