Thoughts of the day

[Tigerlilly81]

Had a hard time sleeping the last few nights. For some reason my pinky finger and side of my hand would not stop contracting. Pretty difficult to sleep through that. Luckily my cat kept me company all night

Since I have yet to be diagnosed due to me not having OG bands but meeting all other criteria I am left in limbo. My my three doctors cannot officially diagnose me and they can't rule me out either. They do want to continue monitoring me though so there's that. They certainly have not shown me the door. My PCP is convinced that I have it but can't be the one to officially diagnose me.

But I just learned that 30% of women in my age group 30 to 39 that have MS also have Biliary Dyskenisa.

Which means that if I were officially diagnosed and treated I MAY not have had to lose my gallbladder.

Even after having my gallbladder out I am still having motility problems and they cannot figure out why. Doc is supposed to call back and send me for some other test I was hoping to keep my medical bills down this year.

[greaterexp]

At least 2 other people besides me are negative for oligoclocal bands, and I sure hope your neurologist understands that it not a definitive test.

I hope you get a diagnosis soon, and one that is accurate, so you can set your mind at ease, as well as get proper treatment.

[rjoneslaw]

I’m sorry for what you’re going through. I hope you’re able to find out what your diagnosis is soon. Are your doctors ms neurologist because that can make a huge difference

[Tigerlilly81 in reply to rjoneslaw]

Sorry for not responding sooner but there has been a big change. No, my neuro doesn't specialize in MS. The new line of thinking as of last week is that I have FND. And my brain lesions are purely a coincidence and being told I probably have MS in 2015 my have brought on the FND.

So basically all these weird episodes I have been having are called psychogenic seizures. Mt vertigo is apparently psychogenic vertigo lol. That time I could not walk for 17 days in 2015 was also likely FND.

So I am sorry for filling the board with my posts. Turns out my issue is not MS.

[rjoneslaw in reply to Tigerlilly81]

I dont think you wasted your time you were educating yourself.

Never think you've wasted your time when you find out or search for new information or facts.

What you have done is made yourself a well informed person.

I wish you luck and well wishes on your health