St. Louis Area Warrior

[stlmsgroups]

Hi, My Name is Mike, and i was diagnosed in Feb of 2016 with RRMS and I am now 62 Yrs old. i had several symptoms that led mt to my doctors to see what was going on. My Cardiologist said it is not heart related, go see a neurologist, my Endocrinologist said it is not Diabetes related, see a neurologist, and brought one in that had an office next to hers. The Neurologist evaluated me and scheduled a series of MRI's. Before I got home from MRI, I got a call to go to ER for admission on IV Steroids. My Neurologist from the closer hospital ran the series of tests, and waled me through the options for which medicine to start taking to sloe it down. I had 10-20 Lesions in Brain and spine, and the only obvious symptoms that I showed after the IV Treatment is walking (Gait issues) and numbness and tingling in left hand/arm. I have recently accepted my condition and make use of each day that i have as a good day to interact with as many people as possible about this disease. I have been active in the local support groups, spoke about my condition and how I deal with the extra stress of my wife's lung condition. I have found many friends I am comfortable talking and listening about this disease.

[bxrmom]

Welcome to this wonderful group stlmsgroups Here you can vent, share, ask questions, or chat with others. I'm Jessie, I was dxed in 2006. I had sudden blurred vision that finally resulted in my dr sending me to a neuro of my choosing for more testing. After testing, I received the dx of MS and started on Copaxone 20mg at the time. After the 40mg dose came out for 3xs a week I started on that. About a couple of years ago I started on Tecfidera. I may have to change due to my bloodwork results, will discuss with my neuro when I see him in Feb.

Look forward to getting to know you,

Jessie

[stlmsgroups in reply to bxrmom]

I started out on Tecfidera and it has kept the lesions in check. The only side effects are digestive issues, and being warm all of the time.

[bxrmom in reply to stlmsgroups]

I do not have any side effects from it but after my last bloodwork, I found out I was JC virus positive so I may change after seeing my neuro in a couple of months.

[mrsmike9 in reply to stlmsgroups]

Just remember that if one DMT has bad reactions there are several more to try. It took 3 for me to have one that didn't give me a bad reaction. It's tough with a spouse with issues as well. My husband has COPD from his work conditions. (He's been breathing cotton dust for 20 years.) But at least you have each other which helps!

[Jesmcd2 CommunityAmbassador]

Hiya stlmsgroups Sorry to have to welcome you under these circumstances. But, well.. it's MS 🙄

Sounds like you have an awesome attitude! And we all love that around here!

So sorry about your wife, I hope she feels better very soon.🤗💕⛄

[greaterexp]

A hearty welcome to you, Mike. I’m sorry you’ve joined the MS club, but glad you’ve found us. It sounds like you are so willing to be supportive to those with MS, and I’m sure you’re a wonderful help to your wife.

Be sure to look into all that MSAA can do for you:

mymsaa.org/

[mm1527mm]

Hello, i am recently diagnosed and joined over summer. It has been a great support group for me

[Peruzzot]

Welcome to the group!

[rjoneslaw]

welcome

[2littletime]

Hi & welcome. I was diagnosed back in 2001 & did everything I was told to do, but never had any support outside of family. I retired on disability in 2006 & finally found this group just last month. Everyone here is wonderful...I wish I had looked for support sooner! This is a great group, I feel like I found a new home.😁

[pamgarner]

welcome to our club , it is a heck of an initiation to get in,great venting place and a place for good ideas and more