First tysabri infusion 2marr πŸ˜πŸ˜ΆπŸ˜‘πŸ˜”πŸ˜•πŸ˜– - My MSAA Community

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First tysabri infusion 2marr πŸ˜πŸ˜ΆπŸ˜‘πŸ˜”πŸ˜•πŸ˜–

Fattius profile image
Fattius
β€’10 Replies

4 hrs.up, 4 hrs. Back, 2 hrs. Infusion I guess??? Then 1-2 hrs apptmt. Anxiety is higher than I can climb!!! Climb???πŸ˜‚ positive 4 antibodies and that sux but I guess we'll see what 2marr will bring!?!

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Fattius profile image
Fattius
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10 Replies
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jimeka profile image
jimeka

Hope all goes well. Let us know how it goes, Blessings Jimeka 😊

Raingrrl profile image
Raingrrl

Good luck Fattius ! I was on Tysabri for 5 years all while being JCV+. It kept me stable with no change in symptoms or MRI results. I was willing to stay on it but my neuro wasn’t comfortable with my risk of PML so he persuaded me to switch to Ocrevus once it was approved by the FDA.

Kenu profile image
Kenu

I was on Tysabri for over seven years with great success πŸ‘. Had to switch when I had unrelated cancer ♋️. Prayers are with you and your family πŸ™πŸ˜‰ Ken 🐾🐾

greaterexp profile image
greaterexp

I wish you the best. Let us know how it went.

Fattius profile image
Fattiusβ€’ in reply togreaterexp

Went fine I rekon. Thanx.

greaterexp profile image
greaterexpβ€’ in reply toFattius

That's great!

Juleigh21 profile image
Juleigh21

Are you going to have to do that drive every 28 days?

I did 44 doses of tysabri and did very well on it until I developed an allergy to it. Good luck! It’s a great DMT if you can tolerate it.

Fattius profile image
Fattiusβ€’ in reply toJuleigh21

3 times n then switch sites. Thank god! Thanx.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

I hope everything went well for you Fattius !! Let us know! πŸ€—πŸ’•β›„

Fattius profile image
Fattiusβ€’ in reply toJesmcd2

Just finished infusion now waiting my hr. Thanx

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