No negativity cont...: I totally... - My MSAA Community

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No negativity cont...

Jackjosh profile image
15 Replies

I totally understand what it means to vent i get that and I realize that this disease sucks like I replied in the first no negativity I will never have a driver's license and I've never had one I will never have a job and I've never had one I can barely do things with my kids I can barely walk I really do things with my boyfriend he must really love me cuz I don't know why he stays around so I get the toughness of this disease I really do but I still see good I'm still alive and my heart is still beating and I'm still here to be able to take care of my children even though I need help with that. I mean I'm 28 years old and I don't have nothing to offer anything in life this disease took everything from me I'll never get to experience things that other people have so I totally get it but you should still try to stay positive it's better for you and it's better for the disease cuz when you are in negativity you relapse cuz it's stress

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Jackjosh profile image
Jackjosh
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15 Replies
Turtlepie profile image
Turtlepie

This is so inspiring and I am happy for you to have such courage. I am 62 now and my kids are all grown I have a 19 year old granddaughter that is expecting my great granddaughter in December. Keeping positive is better for us. Explaining how we feel is not negative but helpful. These communities to me are here to be helpful. The first 5 or 6 years of dealing with this disease was horrible and as I grew to understand what I can and can't I was able to be more normal and I got on a good medication that helped. I want to be helpful if I can and I want to be able to tell someone that I am not having a good day but I will not wallow in it. It seems to pass. We should be a support for each other and do our best to lift each other up

greaterexp profile image
greaterexp

I love this group. We are a positive bunch of people. We face the realities of our disease, but do it with grace and compassion for one another. We really do try to be supportive. We can vent our frustrations without attacking anyone else. I don’t think we just pretend to be upbeat. We just realize that we can choose how we react to the changes in our lives. We can become angry and bitter and push others away, or we can choose to adapt, engage, and try to help others.

Thanks to all who contribute to a warm, welcoming, helpful environment.

You amaze me every day. Thanks for the blessing you all are.

Turtlepie profile image
Turtlepie in reply to greaterexp

I am also so amazed with the people in the community I am glad that I joined and looking forward to sharing my experiences with everyone. Thank you for your encouragement

jimeka profile image
jimeka

Hi Jackjosh your posts are always helpful to me. To read how you are coping at such a young age, with a family. You haven’t lost your ability to be helpful. You give your children a loving nurturing home, and your strength comes through in your posts. It doesn’t seem to matter what age ms attacks us, it takes things away from us, but we have to find new different ways like you do, to enjoy life. Stay strong, enjoy your family and we are here any time you want to vent, blessings Jimeka 🤗

You do have something to offer: your positive attitude!!

redman44 profile image
redman44 in reply to

💯

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Excellent point! Jackjosh 🤗💕🌠

Juleigh21 profile image
Juleigh21

I’m so glad to hear that you’re trying to be positive! God Bless You! I like when people compliment for my good attitude through all this. I guess that means I’m not whining too much 😆

twooldcrows profile image
twooldcrows

if you look around your home you should be able to feel all of the love in your home among your children and your boyfriend and they can help you achieve anything that you choose to do but just in a different way of that achievement so go out and find what you are looking for ...love and happiness isn't lost...have a good laugh with the kids and smile at your family...

carolek572 profile image
carolek572CommunityAmbassador

You're an inspiration to me, Jackjosh and you have been since about the time that I joined. I am sure that many other members in this forum feel the same way. I remember a song that you introduced to this forum and I still listen to it to this day and remember you!

Keep Smiling, my friend,

Carole :-D

Jackjosh, you are a superhero already. None of us know what tomorrow will bring and any one of us, even people without MS, could end up incapacitated in some way. You have such great purpose in taking care of those children...and such a great attitude. I’m certain the love and qualities you give to your family including boyfriend far outweigh the things you are not able to give. And, the truth is a cure for MS will be found; we all hope sooner rather than later. My friend went to Mexico and had the HSCT (Autologous Hematopoietic Stem Cell Transplant) and she has gained the ability to walk again. That particular treatment is intense and not yet FDA approved for US but does show promise. Much love to you! Thanks for sharing your experience and strength with us.

Jackjosh profile image
Jackjosh

Those were just a few of my problems the big ones I have many more but I don't dwell on my problems because life goes on and I need to be here for my children and my boyfriend and that's what keeps me going

Jackjosh profile image
Jackjosh

All I'm saying all my friends and family say that I am a very negative person and very pessimistic but I think this disease made me more optimistic and joyful for the things I do have

redman44 profile image
redman44

Yes!!! Well said!!! I'm so grateful for the message. I needed that.

mrsmike9 profile image
mrsmike9

But don't say you have nothing to offer because you do!

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