Rituxan

[7409]

I am looking for anyone who has experience Rituxan. Specifically how was the infusion, how feel the next day, the next week, and the next month?

[jimeka]

I have a good fri a is on it. She was put on because they hoped it would help the ms and the Lupus that she has. She did not have any reactions to it, she was just alittle tired after the infusion, but so far, so good. Blessings Jimeka 😊

[mrsmike]

I have been getting Rituxim for 5-1/2 years. At first I was getting it every 6 months, but was feeling like I was going downhill quickly as I was approaching the 6 month mark, so I now get it every 3 months and I feel ok when the next infusion is due.

The first night after each infusion I have difficulty sleeping and my face is very flushed the next day.

Hope this helped.

[Kitsey]

I have been using Rituxan for about 4 years. I haven’t had any problems with it. The first time I had a headache and just got more Tylenol. I was able to drive 1.5 hours home on my own. I haven’t had any new lesions so it’s doing the job. I wish you the very best of luck with the Rituxan infusions!

[tnolan2006]

I took rituximab as part of a clinical trial, where it was dosed both IV and also infused into the spinal fluid. I was revealed to be in the treated group at the end of the trial. Until then I wasn't sure, so it was easy for me to tolerate. Some people are more affected by all of the rapid cell killing after infusion, while your body has to clear all of the dead cell debris. They say it feels like you're fighting off a cold.

Look into Mavenclad too. Kind of a similar type of drug (both primarily target B-cells), but it kills the cells more slowly than rituxan. I started cladribine 3 years ago, happy with it.

[lmstunned]

I have been on Rituxan for 2 1/2 years now. I don't have any adverse reactions to the infusion. A little tired after, but I think that's just from sitting so long. I am back to normal self next day. I have not seen any positive results from the medication, but I hope it's slowing the progression of the disease.

Good luck.