New Member Freshly Diagnosed (March 2018)

[DisMLEVal]

Not exactly sure what I'm doing here or what to expect.

[jimeka]

Hello and welcome. I don’t think any of us are sure why we are here, apart from we all have ms. We have a lot of fun on this forum, but it is also a safe place to ask any questions. We are not doctors but we have some very knowledgeable people who are always willing to share what they know. So ask away. We have an online coffee morning tomorrow at 12 noon EST , so if you want to join in and get a feel of the place, make yourself your favourite drink, pull up a chair, all you have to do is respond to the post by saying hi, and it’s one way of getting to know everyone. Hope you can make it, Blessings Jimeka 🎄

[DisMLEVal in reply to jimeka]

Thanks for the response. I am unsure if I will be able to make tomorrows coffee break, but I will try. Thanks to Dragon Naturally Speaking and a fantastic boss, office, and staff, I am still able to work and will most likely be tied up. Is there any type of schedule of events that I can reference for these things?

[jimeka in reply to DisMLEVal]

No, this is only the third of its kind that we have done this year, but come on anytime and feel at home, we are just one big happy ms family. I use the term happy, because on here we all understand what everyone has to go through everyday. Pleased that you are still able to work, a lot of us had to quit. Blessings Jimeka 🎄

[MS_Indestructible in reply to DisMLEVal]

one way to get a feel about our community, would be reading some of our posts from other members. You can also search topics by doing a search using the search box at the top right side of this page.

[CraigS]

What you could be doing here is sharing what’s been going on with you and how you’re dealing with this beast of a disease. That’s what we do and this is the best place to do that. I’ve never met more caring and wonderful people all going through the day to day issues that MS’rs have to deal with. I have found a community where I can share my down times and my good times. It’s too bad that you have to join, but jump in, the water’s fine!

I look forward to hearing more from you.

Craig

[SometimesCrazy]

You are trying to navigate something that is beyond words. We are here to answer questions and to laugh and cry when needed . Just try us out for a while and while and it will start feeling comfortable.

[Kenu]

Welcome to our crazy 😜 group of MSers. This is a great place to vent and find out lots of information about MS from people who care and know about MS. I was diagnosed twenty four years ago and have been on seven different DMT’s over the years. I am currently been on Aubagio for twenty one months and doing great. No new lesions and others stable on last two MRI’s. 👍🙏 Ken 🐾🎄⛄️🎅🤶🏼

[MS_Indestructible]

welcome, and thanks for posting

[anaishunter]

DisMLEVal , welcome to the group. I was diagnosed in May. This forum has been incredibly helpful in providing immediate and real answers from people who've been there before us. Whatever the question, there's always someone who's been there before, has a recommendation or just a supporting comment to provide.

[greaterexp]

I'm glad you've joined the group, though I wish we could get together without MS.

Coming here is a great way to find out more about the real living with this disease, to get encouragement and support, especially when friends or family can't really understand.

By sharing with one another, we build a support group that is more like family. We look forward to getting to know you better.

[SueAB]

DisMLEVa, you are among virtual friends who can understand when your "brick and mortar" friends and family just can't get it. Don't be shy! Jump in whenever you have a question or have input to share.

[RoseySawyer]

Hi and WELCOME! 😊❤🌷

[RoyceNewton]

Hello and I hope you have a nice day, my name is Royce

[Juliew19673]

Hi and welcome aboard! Such a great place to have those conversations about MS that you try to have with friends and family but as they do not have MS they do not understand the nuances of this disease - but WE DO!

I was diagnosed in May of this year and just finished my 2nd full dose of Ocrevus (every 6 months it's given). I'm better than I was in May and didn't even realize how sick I was until I started DMTs, frightening when I look back. But this site has been a godsend and I hope the same for you.

[Raingrrl]

Hi DisMLEVal ! Welcome! There is a broad spectrum of people dealing with MS here. We are a wide range of ages and experiences. MS affects everyone a little differently so its a good place to share information and ask questions.

[DIsneyQueen]

Welcome DisMLEVal, sorry you had to join this group, but like so many before me have said, you will find it safe, comforting and helpful. Best of luck as you navigate this unpredictable disease and remember, you are not alone, we are here. You’d family l and friends may take a while to get it, but hang in there and come to us. You will find lots off support and there truly are many blessings that often come wrapped in this unwanted package called MS. God Bless you

[Helensdaughter]

Welcome to this chat space. It’s a safe place with a lot of smart people with experience. I joined a month ago without any formal introduction because I’ve been trying to get my head (pun intended!) around this. I was diagnosed with ms two years ago. Knowledge is power! Rock on. You got this.

[6092177588]

Sometimes you connect for a reason. Listen to your heart, others and believe in you.

[guitarguy]

Hi and welcome DisMLEVa,

I was first diagnosed on Dec. 26, last year. If you’re anything like me you’re a somewhat overwhelmed, at least a little afraid and can’t even pronounce much less understand a lot of the terminology used in discussions, treatments and side-effects MS treatments not to mention whether or not it will affect your longevity, your relationships and your daily life/routine for starters.

You’re here because you probably want information and that will continue for the foreseeable future. MS is a complicated affliction as are most of its treatments.

You can expect to interact with a group and level of unbelievably caring people who have all been where you (and I) are now and at virtually any stage should you pass through them. The good news is that you could not have picked a better group of people who have the same interests and concerns and are willing to share as much or as little as you can take in. The pace of information input is entirely up to you. You can lurk and/or participate at your discretion (like me).

You can vent, be happy or sad, share or not and there’s always someone willing to walk down any particular path with you.

I’ve been a member/moderator of a number of forums over the years. None have even come close to this one in terms of personal value and impeccable administration.

Do you have any questions you’d like input on? If so, go ahead and trot them out. This forum is amazingly non-judgmental.

There are many who have already been where we’re at and who are willing to share their insights, experience and wisdom.

Here I am acting like I own the place! 🤪 That’s an indication of how quickly the members make you feel welcome and relaxed. That’s the tenor and tone. There’s nothing else like it in my experience.

Welcome!

Dave

[Jazzihorsecat]

Welcome to our Family of MSer Warriorz & guess what, Always remember, Now ur family too, so just pull up a comfy chair or couch, & join right in! I too was just DX'd in May, The MSAA site has much answers for your many ?'s! So, here you'll laugh, cry, vent & Rant! Many hugs for ya!💐🌸💗❤💚💙---Jazmine🌹Rose💜

[mrsmike9]

I felt the same way when I joined. I had been a part of another MS group that was...well, not my thing. I hesitantly joined this one and have been loved and supported and I can give back love and support as well. This is truly a unique group. There are some who are quite well versed in medical things and others (like me) who just know our own experiences. But all are welcome to voice their struggles and triumphs. (Just no bashing or politics!)