Thank you

[luvhair]

Thank you everyone for advice..very helpful,,i just dont have the energy anymore..to do anything..im tryin to put my mind in a positive outlook and my mind n body arent workn together..have good day everyone

[jimeka]

Do you still have that lovely long hair like in your photo? You mentioned you were a hair dresser, well would you like to do your hair in a nice way and do a selfie and share with us all . I am useless at hair, so mine has always been short, but I really appreciate the way these younger girls twist and turn their hair in seconds and the result is amazing. Blessings Jimeka 🦋

[luvhair in reply to jimeka]

Hi i do..its really hard for me to do anymore i dont feel much like it pretty much yep pull it up..i did get about 16 inchez cut offawhile ago bout month ago i could post it..

[jimeka in reply to luvhair]

Yes please, hair dressing is a real talent🦋

[luvhair in reply to jimeka]

I posted it from last month on a good day. It's vety curly so i did flat iron it. Havent had any good days since then..i have to put my hairstylist license inactive for now i wont lose it just puts me inactive with cheaper fee. If by a miracle happens i will hv to make up my 8 ce hours so its really hard doing it tht way but rite now not capable do any hours or work

[Juliew19673 in reply to luvhair]

Doing hair w/MS would be hard! I was a hairdresser in my 20s and was a fantastic career, couldn't imagine doing it now. Sorry your dealing with the exhaustion, such a pain to sleep all of the time and still be tired! Since being DXed in May Ive tried every pill possible that was supposed to help and found that none helped, but upping my walking each day does give me more energy, much to my chagrin (was really hoping for a pill)... Hang in there!

[luvhair in reply to Juliew19673]

Thank you yea its really grieving over it..things just keep getting worse i cant take meds either as the positive jcv..i put my life n hair ..n my clients miss m dearly. N the social part. I just cant take it much anymore cant do much its very hard ive tried everythin pull mysrlf out of this i had 2 months remission this summer after being down n homeboynd 17 months..dr said tht was good not really now its just a few hours a day of any thing i can do..im gonna check bout caregiver thing see what thts about.

[Raingrrl in reply to luvhair]

Hi luvhair ! I’ve seen you make the statement that you can’t take the DMTs because you are JCV positive. Did you know that some of the drugs don’t seem to have the PML risk and in others it’s minimal? I am JCV+ too and was on Tysabri for 5 years before my PML risk became too high. I hope you are being treated by a neuro who specializes in MS. They should be able to help you find treatment.

[luvhair in reply to Raingrrl]

Yes thry said no to any ms drugs..so yea i just at a loss with it..

[kdali in reply to luvhair]

Could you find another MD? There’s plenty you can do with even a high JC positive.

[luvhair in reply to kdali]

Ivr looked not many opinions n my state..plus i also hv chrons n colitis so its a real difficult case 😥

[Raingrrl in reply to luvhair]

A neuro specializing in MS told you no to all MS drugs? That’s surprising. Is there another MS neuro you could try? Doctors that haven’t specialized in MS are often not up to speed on the latest research or treatments.

[luvhair in reply to Raingrrl]

Yes last year she said amigio this few months ago said no as the risk and side effects would be worse than wht im goin thru..so i have to trust that . Idk