Humidity : I'm from New Jersey and it very... - My MSAA Community

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Humidity

nep420_ profile image
35 Replies

I'm from New Jersey and it very humid out, can this cause a flare up? Will it intensify my symptoms? Looking for a friend

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nep420_ profile image
nep420_
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35 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

You have friends here nep420_ 😊 can I ask, how long ago were you diagnosed?

And yes, heat and humidity can be an evil evil thing for us!!! I know that I can actually get sick if I'm not careful.🙁

So you try very hard to stay cool, with AC and cooling products!

Check out mymsaa.org/msaa-help/coolin... for an application!

And get neck wraps!! See greaterexp

😂🤣🤗💕

J🌠

nep420_ profile image
nep420_ in reply to Jesmcd2

Tnx a lot for the heads up

nep420_ profile image
nep420_ in reply to Jesmcd2

I was diagnosed 2016 but I was in denial ever since.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to nep420_

How's that working for you?🤔 😂🤣 Sry.. bad joke... Ignoring it... Well if you have no symptoms and taking a DMT (disease-modifying treatment) you can ignore it.☺️

🤗💕

J🌠

greaterexp profile image
greaterexp in reply to Jesmcd2

The offer still holds if anyone needs one!

jimeka profile image
jimeka in reply to greaterexp

What with butterflies. Hey it will fly to the U.K. on its own. 🦋 🍫

ssdw1958 profile image
ssdw1958

Humidity is not my friend just like jesmcd2 said try to stay in AC I can tell when a hurricane is starting up down in islands 🌴. My legs don’t want to work. I keep cold packs in the freezer. Now in the winter the bitter cold works like that also and I have a heating pad.

For now stay cool 😎

nep420_ profile image
nep420_ in reply to ssdw1958

I'm going to Puerto Rico next week Lord give me the strength

ssdw1958 profile image
ssdw1958 in reply to nep420_

I wanted to let you know something I had gone into it and show a few years back and I knew was going to be very hot so I took a plastic bag with me and at one point I asked my husband to go up to one of the people that was selling drinks and I asked him to get me some ice from one of the coolers which she did and I enjoyed that ice sitting on my knees. Just putting it out there so maybe you can enjoy it your time in the island much better. Have a great vacation bye for now.

Royjr profile image
Royjr

Yes to everything you asked. Be careful being out in this heat and humidity. It’ll hit you without warning. Be safe and glad to meet you.

nep420_ profile image
nep420_ in reply to Royjr

Tnx

Allen5280 profile image
Allen5280

nep420_ , the weather here has been unusually wet and rainy for August. Normally it's 100°+ for most of the month. The temps have been quite a bit lower for this time of year, the humidity has been way higher. I was feeling better in July @ 112° and dry than I am at 90° &71% humidity. The last week has been really tough on me. Spasticity, neuropathy, trigeminal neuralgia is way up. I kinda just push through the day till evening taking my muscle relaxers about 8pm so i can get confortable enough to sleep. If I don't sleep well, that makes it even worse. Stress & anxiety, lack of restful sleep and heat (humidity also) are my biggest adversaries.

nep420_ profile image
nep420_ in reply to Allen5280

Sry to hear that? Where are u from? So working over night can be bad for me?

Allen5280 profile image
Allen5280 in reply to nep420_

I live in Oklahoma. I don't know about necessarily working overnight as long as you are getting adequate sleep. I often suffer from insomnia from time to time. I'm not sure why but at times I feel my best a 3am?🤔 it may be due to the time of year and the heat of the day. I recently had started a new medication to help combat my extreme fatigue issues and it has got me back on a normal schedule and I've been able to do more in the mornings before the heat sets in.

ssdw1958 profile image
ssdw1958 in reply to Allen5280

Hi this is a ssdw1958 I would like to know the name of that medicine I have not had a good night sleep in so long. I may sleep for 2 hours and when I do that I think that’s a good thing. But I know it's not.

Allen5280 profile image
Allen5280 in reply to ssdw1958

Its Modafinil a generic for provigil... he has me take 1/2 a 200mg tablet in the morning and the other 1/2 before noon. If I take it any later I won't sleep at night. My insurance denied it at first but my neuro appealed it for me.

nep420_ profile image
nep420_ in reply to Allen5280

Tnx good brotha I'm here if u need to talk. All this time I thought I was alone I'm glad I joined this group

Allen5280 profile image
Allen5280 in reply to nep420_

You are not alone! This is a great group and we are all dealing with this horrid affliction. Glad you found us, not glad anyone has to!

Iona60 profile image
Iona60

I lived in denial for ten years. After getting slammed down one too many times, I gave in and retired. I love in Florida and deal with the humidity with 🐸 toggs. froggtoggs.com/cooling/

You can also get them on Amazon. I keep two wet and in the fridge. I use one and my neck and one inside my hat. Just dip in cold water to recharge. Love them.

Welcome!

welcome to the group nep420_

mrsmike profile image
mrsmike

Hi nep420_ , the humidity does me in. I have trouble walking and standing so when it is humid my legs just melt from under me. I look for assistance to the nearest chair and air conditioning. I grew up in Bergen county. Where are you from?

Jbahnan profile image
Jbahnan

Hello NEP, yes humidity makes symptoms worse,humidity is one of the worse thing for us. Take care GOD BLESS!

goatgal profile image
goatgal

nep420 Unfortunately, humidity can affect MS (or at least my version of it). Here in Virginia, summer is always hot and steamy, especially this summer with all the rain. I probably wouldn't survive very long without AC, because even short jaunts outside make my legs leaden and walking is like pushing through waist deep molasses. The whole Mid Atlantic region (which includes Delaware and parts of New Jersey) is similar as I recall from a dozen years in Delaware. You're sure to find lots of friends here in the health unlocked community. Howdy!

Diva1976 profile image
Diva1976

Yes the heat/humidity makes MS be 10X’s worst! Try to stay cool!

scoutman profile image
scoutman

Yes! I live in Delaware . when it is humid outside I stay in. It makes me feel very foggy and sometimes even my speech is affected. Cooling wraps can help. I had read that any extreme, heat, humidity or extreme cold can make symptoms flair up. I am so ready for the cooldown of Fall! if I have to be out, I will wet a bandana and wrap it around my neck and my wrists, and if it gets real bad, you can take a shower when you get in and turn the water gradually cooler and cooler and cool down your core. Usually I stay in a lot in the summer. Fall is coming! Hang on! :)

MarkUpnorth profile image
MarkUpnorth

Heat and Humidity are bad, but it's the humidity that really does me in. I'm very frugel on my disability budget, and limit the air conditioning to the bedroom. I do however use a dehumidifier elsewhere in the house, and do ok. I tested this theory out to the max a couple years back, intentionally taking a trip back to the southwest, during the summer, in a heatwave when temps were always 110 degrees plus in Phoenix. Spent all day, day after day in the oven in your face, and loved it! It was hot, but not draining. Same thing in Colorado during a heat wave, where all the locals were dying from the unusual heat. Guess I'm like one of the skeletons laying in the sun stating "but It's a dry heat". Hope to move back to the Southwest one day soon. Till then, I'll rely heavily on my economical dehumidifier and my tiny window unit.

dogdaddy profile image
dogdaddy

Increasing your B1 vitamin intake can help with thermal regulation

nep420_ profile image
nep420_ in reply to dogdaddy

Tnx

sashaming1 profile image
sashaming1

This is the first time I've heard humidity singled out as a MS issue. I've heard about heat being an issue many times. I've also experienced MS issues from the cold before.

lbenmaor profile image
lbenmaor

Yes it can. Try to stay in air conditioning and there are cold compresses you can buy and keep them in

the freezer. Wrap them in a towel and put onyour body. It helped me when our air cond. broke.

Leslie

lindaz9 profile image
lindaz9

Hi there. I am in New York and it is really humid here and I don't feel good at all. I am hoping it is the humidity. I will see if I feel better when it breaks. I hope you feel better soon.

nep420_ profile image
nep420_ in reply to lindaz9

Sry your going threw this. I'll keep u in my prayers and hope that u feel better soon. 💪🏽🙏🏽🙌🏽

Joc-42 profile image
Joc-42

We all are your friends. Heat and humidity are very hard for me.

6092177588 profile image
6092177588

Yes I think so. I live in Florida and that is my experience. Cherry hill has great product such as cooling vest and more if you qualified. I use ice on arm,back and wrists.be well.

Gnugirl profile image
Gnugirl

Hi nep420,

I am from PA and the heat and humidity here causes my symptoms to be much worse. Once I can cool down they go away fast. If I am in the heat to long, even a couple hours with my cooling aides, it can cause a flare and it might last 3 or 4 days. I try to not get overheated and use cooling products a lot.

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