Hello....: I am a recent member who has MS... - My MSAA Community

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Hello....

htenuta profile image
9 Replies

I am a recent member who has MS. I'm in the middle of a massive flare up and am looking for help as I have become homebound recently. I'm very interested in programs that can help me survive during this time. It is difficult at this time. Even typing is a struggle and the fatigue is overwhelming. I need an assistant or someone to help me around the house. fortunately or unfortunately, I am not at or below the poverty level so I am not able to find any assistance online. A website or phone number that I can reach out to would be a great help.....

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htenuta profile image
htenuta
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9 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi htenuta I'm sorry to hear of your struggles. Let' see if we can try and see if we can get you some help.

Check out mymsaa.org or better yet give them a call on Monday.

800 532-7667 😊 no guarantees tho.

I hope you feel better soon. 🤗

Jes🌠

htenuta profile image
htenuta in reply toJesmcd2

thanks, Jes. I will call Monday.

Fancy1959 profile image
Fancy1959

Good evening htenuta, it's Fancy1959. Another resource besides the one Jes has offered would be to call the National MS Society act 1 800 fight MS. When you call, they assign a caseworker to you and then they will work with you see what resources they can offer and or what doctors they can help you find in order to better manage your MS.

We are glad you have found us and this incredible chat room. Here, you have found a safe place to come and ask questions, voice concerns, or just simply speak to others who truly understand what you are going through. Other individuals in the room might have additional information to share with you. Don't count us out until you've talked to each and every last member because we are full of incredible, kind, and compassionate individuals here. Until we speak again I wish you the best in your search for assistance. Please when you have a moment get back to us. We would love to get to know you better. I am sure we have much we can learn from one another. Until we speak again please take care and remember together we are stronger in our fight to beat this dreaded monster we call MS. Fancy.

greaterexp profile image
greaterexp

You’ve already got some great resources from a Fancy and Jes, so I’ll just add a welcome.

I’m sorry you’re going through a flare and hope you can find some help as you get better.

Let us know how you’re doing.

Yooper profile image
Yooper

Htenuta: I wish I had an answer, but this a good site to check. I will put you in my prayers 🙏. You will get through this. God' strength and healing.

Linda3579 profile image
Linda3579

I hope you feel better soon. Have you reached out to your neuro for some help?

htenuta profile image
htenuta

thanks to all here. I will try to keep you updated but typing is a challenge too. I'm mostly bedridden at this point and finding the strength to get to the computer is rare. Thank god for auto -correct.

htenuta profile image
htenuta

Several have asked about seeing my neurologist. I have an MRI scheduled for tomorrow. I'll let you know how that goes when I'm able to get back to my computer. Please don't take my slow response as a lack of interest. I have to budget my energy at this time. Thanks for all the help and responses. It is appreciated.

tphouser profile image
tphouser

Hello htenuta, I’m Pam. Not sure if you’ll be able to find anything but when a relative of mine needed assistance (she had cancer), she contacted the local Chamber of Commerce and the Office on Aging and they sent her someone to help her. The lady cleaned her home 2x month and picked up some prescriptions for her. Hopefully you’ll be able to find someone that can help You or at least steer you In the right direction. Hope this helps!

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