Well today’s my 1 year anniversary of my emergency hospital visit and 5 day hospital stay that resulted in my MS dx. I must say it was no April fools joke. It was real.
Just want to thank everybody here that’s helped me thru the first year of this never ending journey. You have all been so supportive and helpful learning how to handle the day to day struggles we all face. When nobody else understands why I want to be alone to just sit back and take a break or just break down for a good cry and feel sorry for myself for a few minutes y’all understand. Thanks for all the suggestions information support I get here. When I need an uplifting I can get it here. But above all when I need a prayer I know this is the place to come.
Thank you for making this 1st year much better than I could have imagined.
I love you all and again thank you.
Almost forgot to wish a very very blessed and Happy Easter to all.
Donnie
Written by
Doubled51
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wow! April Fool's Day is quite a day for the anniversary! glad you have that 1st year behind you. next month will be my 28th year--doesn't seem possible!
What a April fool joke I got huh. But I didn’t laugh about it a lot.😞😞 I was blessed to have had 65 pretty good years before I received my little present so I can’t complain. Time passes so fast it done before you know it.
Praying this is a better year and hope yours is to.
Well - uh, Happy Anniversary? I'm glad you found d this forum and found the peace and understanding that it provides. Have a blessed and joyous Easter.
for some reason I did not know this was your first year of MS dx. Forgive me for not wishing you a "happy" anniversary. The first, second, third, fourth, fifth, sixth . . . years are the worse. I just think there is no possible way to come to terms with this stuff. It is places like this board, where we can turn too for support. Wish there had been a place like this back when I first got my dx. Glad to have you on board. ~terry
You’re right there is no coming to terms all we can do is accept the changes in our lives. Because no two days are ever the same so we do one day at a time. But here I’ve received the understanding and support that I don’t get a lot of anywhere else. This chat room has truly been a blessing to me. I’m glad I found this place to calm me when I hyperventilate. Which I do occasionally.😂🤪😜
It’s def not one of my favorite anniversary’s for sure.
Thanks Erin I appreciate your kind words and all the encouraging and uplifting things I receive here and especially the prayers. Y’all have helped me thru some trying times to say the least.
One of the problems with MS is there isn't a new normal as things are always changing. But, God never changes and is always there for us!! Prayers 🙏 🙏 to you and all of us. He is risen!!
We are all just saying that you and us need this chat/discussion/ vent time with others who really know what you are dealing with. I feel better just by knowing that I am not alone. We are all here for each other. 🙏
This is the first place I come to when I need some advice or encouragement. Having folks who live this crazy life we live is truly a blessing.
People who don’t go they the days of fatigue and or not being able to walk without staggering or sometimes not able to walk at all just don’t understand our everyday life. But here we do thank God.
I wish it was just an April Fools joke, but putting that aside I'm glad you joined this forum. I really do value your posts and comments. Happy Easter!
Awe Donnie, it's Fancy1959. You just made me want to sit down and cry along with you about your one year anniversary. I too would not wish this disease on anyone but we have to remember how lucky we are to have MS. Some days I must recite that to myself a dozen times but it's true no matter how hard we have it it could be worse. I lost two sister-in-laws one to pancreatic cancer less than a year-and-a-half after she was diagnosed. And the other to breast cancer less than two and a half years after she was diagnosed.
Knowing that we are helping others as you all help us gives me such a feeling of Pride and accomplishment. Thanks to this chat room I no longer feel like a worthless disabled person who can't even hold a job. I have a purpose in life and I enjoy my purpose in life. You lift me up unknowingly just like I hopefully lift you up to. Here is a big gigantic hug coming to you through this electronic connections. It's stories like yours that make us truly understand how vital and important we have become to people in this chat room. Thank you for becoming such a vital part of our chat room. You add much much more than you will ever understand to this extended family. Take care.
Thanks Fancy. Every word Was from my heart. This group has helped me thru some trying times. When I was diagnosed I didn’t have any idea what MS even was or did. Did a bunch of research but have learned more from the people in this chat room than all I could read anywhere on internet.
I lost a brother to kidney disease at 63. He was an alcoholic for years before he had to go on dialysis but when you lose your only brother to an incurable disease it doesn’t make it any easier to accept. I lost my father to cancer after a lot of suffering so I truly feel blessed that I have MS instead. And especially blessed that I had a good long life before MS found me. Yeah I have my problems and bad days but I’m alive to see my grandkids growing up and my great grand kids so when I say I’m a blessed man I mean every word.
I just read your reply and I have to agree with you I was so very blessed to be able to play so hard for 53 years. I was backpacking in the early fifties, took horse pack trip in I'll. Rode my horse around our farm every day if I could, and played competitive volleyball two to three times a week. It's amazing and I'm so so very grateful that God gave me so many years to do the wild and crazy things I always loved to do. It's a good thing I have three sons because we got into all kind of wild stuff together with the scouts and by ourselves. If I had a prissy little girl I don't think I would have known what to do with her. God is great in his wisdom is He not! Fancy.
I to have had a ball. I’ve built enough hot rods and spent 15 years of my life building and riding Harley’s and still building hot rods as ms lets me so I’ve had a ball and still trying. Plus my son has been my deer hunting partner since he was 7 and he’s 40 now so life is still good.
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